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#82937 10-26-2008 10:23 AM
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Jimbo Offline OP
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Completed IMRT (35) sessions 9 weeks ago, along with weekly chemo. Recently caught a cold which caused my throat to get quite sore and difficult to swallow. Last night I looked at my tongue and found it was split about 3/8 of an inch (width and depth)most of the way back toward the rear od my mouth. Any ever have this experience? Night call to on-call doctor (MO) said he suspects damage from treatmentsm but recommends seeing ENT. Thoughts or experiences?

Also have turkey neck of softball size - having just arrived this last week.

Thanks


Dx 5/08
Stage 3 SCC
No primary ever found
Completed 35 IMRT tx 8/13/08.
Taxatol, cisplatin and erbitux weekly for 8 weeks.
No surgery
PEG
PET/CT Clear 11/08
Jimbo #82941 10-26-2008 10:45 AM
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Posts: 250
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Jim,

I've often joked about my tongue feeling like it might break from the dryness of it, but yours is no joking matter. I believe I would seek treatment ASAP. You didn't mention bleeding, so I'm assuming it's not. Have you spoken with your RO? You had no surgery, but I think I would feel better if the ENT I saw was as a referral from one of the oncology Docs and experienced with oncology patients himself.

Lani


SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
Lani G #82942 10-26-2008 11:19 AM
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Hi Jimbo,
I am in WA as well and used to have a neighbor we called Jimbo ... I so hope this is not you .,.. as I would not want to have a cancer diagnosis in common with an old neighbor but if you lived in Bellingham prior, lemme know!

Anyways ... have no inside scoop info on your situation but I can only imagine how troubling this would be... I am so sorry you are facing this after successfully coming thru treatments. I will hold you up in my prayers and keep you in my thoughts., Please keep us posted as we truly do care.

Are you being treated at the UW? I live up by Marysville but go to UW for my care. Will probably use Mt Vernon for my ongoing "observation mode" care however, so I am not in traffic for hours all of the time... every trip down there takes a full day and Mt Vernon is tied in with them now, thru the cancer care alliance so I am pretty sure it is good quality care and they get advice from UW ongoing, so I am asking if this is a plausible idea for me, and hoping that it is. I also plan to move to AZ before too much longer and in Jan the Cancer Care Center opens a new facility in Goodyear right by Phoenix, so I will be all set there too.

anyways I am rambling bout things that have no connection to a tongue splitting so I willo hush but i don't see many on here from WA, so it is like you are a neighbor even if you are not my true old neighbor, Jimbo! smile ,...

I wish you the very best and am praying there is an easy explanation and resolution to your current situation. God bless.


Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.

===============================

"Those who think by the inch and speak by the yard, should be kicked by the foot."


azcallin #82943 10-26-2008 11:26 AM
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Posts: 9
Jimbo Offline OP
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Don't think I'm the old neighbor. Have not lived in B'ham before. I am getting my ENT and potential surgery care at the UW, but radiation and chemo were at Swedish. First ENT retired ao I looked up a good one at the UW. Thanks


Dx 5/08
Stage 3 SCC
No primary ever found
Completed 35 IMRT tx 8/13/08.
Taxatol, cisplatin and erbitux weekly for 8 weeks.
No surgery
PEG
PET/CT Clear 11/08
Jimbo #82946 10-26-2008 11:37 AM
Joined: Sep 2008
Posts: 250
Platinum Member (200+ posts)
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Joined: Sep 2008
Posts: 250
Jimbo,

I'm glad you're going to an ENT at the UW. In your position and location that's where I would want to go. Let us know what happens.

Lani


SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08

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