| | Joined: Oct 2008 Posts: 6 Member |  Member
Joined: Oct 2008 Posts: 6 | Kum, wanted to know how u r doing? please reply back. My mum has the same type of cancer u have. | | | | | Joined: Oct 2008 Posts: 6 Member | | Member
Joined: Oct 2008 Posts: 6 | Lani and azcallin-- tank u for the replies. I posted a new post, but as my mum's situaiton is so similar to Kum's, I was very much waiitng to see if he would respond too. Does anyone know ? | | | | | Joined: Oct 2008 Posts: 6 Member | | Member
Joined: Oct 2008 Posts: 6 | I am loking for information on the following:
1. Trismus
2. 2 teeth hanging in her right cheek where the cancer is and the dentists say they cannot remove.
more than cacner or trismus she is cring out everyday about the pain caused by the two teeth that rub her cheek in between day and night..please reply back if anyone knows where they can or cannot remove these teeth there...PLEASE DO REPLY IF ANYONE HAS AN ANSWER!!!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Seema,
Without more info on your Mom, it's hard to really know what's going on BUT if she is not going to treat her reoccurrence per her doctors' recommendations then her outcome is doomed at the start. This cancer is very aggressive and it needs a likewise aggressive treatment plan to even give the patient a chance at survival. Please encourage her to seek other QUALIFIED opinions and stick with the traditional treatments. Her life is at stake.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | [quote=seema]Wanted info on Therabite for her situation unable to open mouth.[/quote] Seema, do a search of the forum on 'therabite' and you will get a lot of hits. Here is a link on the OCF site that will be of interest and has a link to study on effectiveness of Therabite and other treatment: http://www.oralcancerfoundation.org/dental/trismus.htm
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | | Joined: Jun 2008 Posts: 5 Member | | OP Member
Joined: Jun 2008 Posts: 5 | Hello All
Sorry that I didn't browse the site for a long time. Sorry Seema that I couldn't reply to you sooner. How is your mother doing now?
My surgery and Rad treatments went well. No Chemo. I am recovering well now and visiting doctors for follow-ups regularly. Able to eat and no problem with saliva generating from left side of the mouth but right side of the mouth/ flap side gets dry most of the times which is not a big issue. My wife delivered a boy who is 5 months old now and playing with him helped my healing process. I feel good to get back to the forum and will keep you all posted about the developments. Thanks to all for your best wishes and prayers.
SCC Buccal Mucosa T2N0M0
Dx - 2 Jun 2008
Surgery - 11 Jun 2008
Rad 30x IMRT ended - 18 Oct 2008
Age 37
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Glad to hear that you are doing so good!!!
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
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