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#81155 09-27-2008 09:24 AM
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"OCF Canuck"
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Just wondering how she was doing...

Donna


Donna,68, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing mechanisms so am now a “for life” tube feeder. I am working hard to get used to that while fulfilling my dreams. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Joined: Jan 2007
Posts: 346
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Donna,
I have been wondering the same thing! It's not like her not
to check in. I cannot remember if her daughter has her own
screen name or if anyone has heard from her?
Malka, I bet you remember how to get in touch with her
daughter?
Debbie


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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"OCF Canuck"
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Just checked her "Carepages" site and there hasn't been an update on that since April. Hope she has just been too busy to check in!

Donna


Donna,68, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing mechanisms so am now a “for life” tube feeder. I am working hard to get used to that while fulfilling my dreams. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Joined: May 2002
Posts: 2,152
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I sent her a PM last Friday and asked for her or her daughter to give us an update some maybe we will hear soon.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Joined: Jan 2007
Posts: 346
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I hope she is just busy with life and not ignoring us. Heck,
I wouldn't blame her if she did ignore us, we are not the best
group to be a member of, although we are some of the best people
to know and lean on. We know what it is to be "in the middle of everything" and still take care of each other.
I sure hope we hear from her soon and that she has been having
a blast with her cheerleaders!
debbie


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
Joined: Jun 2007
Posts: 5,260
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Posts: 5,260
I hope it's business keeping her occupied also. She is a very nice person and we need to hear something .


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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I hope she is doing ok. Isnt her daughter in college? If so she is probably very busy right now and hasnt had time to update us. Its also peak cheerleading season. Lets pray thats whats goign on.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 1,340
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"OCF Canuck"
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"OCF Canuck"
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Still nothing?? I will write to her email if no one has heard. I'm getting worried.

Donna


Donna,68, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing mechanisms so am now a “for life” tube feeder. I am working hard to get used to that while fulfilling my dreams. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Joined: Jul 2007
Posts: 939
"Above & Beyond" Member (500+ posts)
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Posts: 939
Yep, me too.


Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
Joined: Sep 2007
Posts: 98
Senior Member (75+ posts)
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Posts: 98
I think her daughters may belong to the OCF Facebook group. Is there a way to check with her daughters through Facebook? I really don't know how these social network web sites work, but thought it may work.


Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
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