#81371 10-01-2008 02:23 PM | Joined: Sep 2008 Posts: 4 Member | OP  Member
Joined: Sep 2008 Posts: 4 | Hi all, our RO attended a conference in Boston last wk & picked up some samples of OraMoist. OraMoist is billed as a small dime sized disc that adheres to the roof of the mouth & thru its time-released formula slowly disolves to help produce saliva & lubrication in the mouth. It is non-prescription. Has anyone tried this product? If so, do you give it thumbs up or down? Pls lmk. Thanx.
judy, cg to hubby mike (T4-N1-M0 SSC left tonsil, non-smoker, non-drinker, age 58)
treatment: aug 18 - oct 3, 2008, cisplatin (3) w/concurrent imrt (35)
we're waiting for 'all clear'
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Joined: Apr 2006 Posts: 583 | Judy & Mike,,
Hello to you both. I have never heard of this OraMoist. I would love to hear more about it. I am sure there are a few others here that would also.
I have not heard of it on the board, but I could have missed it. I hope some one will respond soon. Maybe Brian Or Gary will chime in, maybe they know something.
Thanks for the information and Welcome to OCF.
Take care Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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Joined: Jun 2007 Posts: 10,507 Likes: 7 |
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | I got some samples last week and tried them. For me, kinda funky having something stuck to the roof of my mouth. Felt like my puppy eating peanut better (probably looked like him too). It did however release a gel like coating that gave the sensation of having more saliva.
I can honestly say that I much prefer the Biotene gel over the Oramoist.
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Sep 2008 Posts: 4 Member | | OP Member
Joined: Sep 2008 Posts: 4 | thankyou diane for the welcome, christine for the link to the article & kevin for sharing your experience w/the oramoist--had to smile at your descriptive image of the puppy & peanut butter. we have the biotene product line, spray, mouthwash & gel. mike has used the mouthwash & spray (which he really likes), but hasn't yet tried the gel. guess we'll conduct an at hm side by side trial w/these 2 products to see which he prefers, if either. our best to all, judy
judy, cg to hubby mike (T4-N1-M0 SSC left tonsil, non-smoker, non-drinker, age 58)
treatment: aug 18 - oct 3, 2008, cisplatin (3) w/concurrent imrt (35)
we're waiting for 'all clear'
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Joined: Sep 2006 Posts: 8,311 | Well I went on line and found that a Alberston's near me was supposed to carry it so I went to try it. They didn't have it but said they would order it and I could pick it up the next day. Just went back today ($8.99)and I just "glued" one inside my mouth to my hard palate as instructed. I've had it in for about an hour and my initial thoughts are:
1. It's hard to open each package. You must carefully use scissors. Can't tear it.
2. I don't like the feeling of it stuck to my hard palate.
3. Produces to much saliva for me as my dry mouth is not really that bad. Even with this new found saliva I still have to lick my lips as all I do is swallow all the time.
5. Not cheap as each one costs $.56 and is supposed to last 2-4 hours.
So far for me....I'll stick to my Biotene gum. Might be a better deal for someone whose DM is worse than mine and the gum isn't enough.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Joined: Oct 2006 Posts: 383 | Weird this came up. Saw it in a Walgreens about a Month ago. thought it was worth the investment to try overnight. Used one night and then didn't even attempt one during the day. Sorry but it didn't work out too well. Like many others here, I'll stick with my Biotene products.....
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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Joined: Jun 2009 Posts: 440 | hmmm, interesting because it's on my things to do list tomorrow, I was gonna pick up a pkg. I'll have to give you my two cents after I try!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | For what it's worth, David (Deejer47) really liked OraMoist. Since I cross referenced his post to this thread, it's only fair, I cross reference David's post Dry mouth Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
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