#81127 09-26-2008 02:00 PM | Joined: May 2008 Posts: 43 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2008 Posts: 43 | just started reading about it. It works on rats and now theres some trial on human. Just orered some from a nutri-something company but there i a farm in ohio i talked to on the phone that has a big batch being made right now that will be ready in a week or so. Might a well give it a try sounds tasty even if not a big help. I love all berries.
Tonsil into base of tongue 3to4cm tumor. Giant lemon sized 9cm lymphnode. Squamos cell carcinoma
April 5 diagnosed. June 5 started treatment. Cetuximab Carboplatin Paclitaxel once a week for 6 weeks.Then 7 weeks of radiation plus chemo cisplatin then 4 weeks rest then neck disection was Nov 7 2008
| | | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | What do they claim it does, Victor?
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 65 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 65 | Please search the OCF oral cancer news section. There are many articles about this in there.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Black Raspberries are being researched at several institutions across the country, including here at the James Cancer Hospital/Solove Research Institute in Columbus. They have been found to have a high concentration of anitoxidants, and specifically, ellagic acid, which has been observed to be a cancer retardant in animals. LSU is also doing similar research.
So far, most of the work has focused on esophageal and colon cancer, thought some studies have shown an impact in oral cancer as well. As Brian said, there are several articles on the site dealing with this.
I think our own EZJim was part of a study on the impact of black raspberries on recurrence in oral cancer, but I'll let him chime in on that. ;-)
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I was in the Raspberry study at Ohio State James Cancer Center. They gave me small packs of frozen concentrated raspberries. I will say, I wish I still had some. LOL They are just like the pulled from the vine ones. I get a call once in awhile form the pretty lady that was in charge of the study. Very nice young lady.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Jim, What do they say about old dogs  We have more information on pretty nice young lady than what the raspberries did for you. I guess as you are banned from any physical work at the moment you can concentrate on other thoughts  Love Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Now Gabe, I wouldn't call a pretty lady work. LOL I wasn't allowed any lip contact but he never said anything about " work". I need some exercise big time. Sorry , but I have to be my ornery self. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | |
| Forums23 Topics18,248 Posts197,134 Members13,320 | | Most Online1,788
Jan 23rd, 2025 | | |
|
