#80466 09-15-2008 05:39 PM | Joined: Sep 2008 Posts: 14 Member | OP  Member
Joined: Sep 2008 Posts: 14 | Has anyone out there had induction therapy (chemo combination of Cisplatin, 5FU, and Toxotere and radiation to follow)? I just would like some feedback on it if you can help. Thank you.
age 35 at DX,EBV-, HPV+,stage 4a oropharyngeal BOT rt side 1 node+/15 nodes - rt side of neck, non-smoker/drinker, induction therapy to begin 9/18/08 cisplatin,5FU,taxotere 2X, radiation to follow for 7 wks, radiation completed 1/21/09
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | Hi T&T
I went the induction, surgery and radiation route, same drugs. Very successfully I may add! How can I help?
Kevin
Last edited by Kevin - Memphis; 09-16-2008 05:41 AM.
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Sep 2008 Posts: 14 Member | | OP Member
Joined: Sep 2008 Posts: 14 | Can you tell me how many rounds of chemo? My husband had surgery to remove the tumor on 8/13 and it was biopsied at that time. They are going to do 2-3 rounds of chemo (starting tomorrow) 5 days a piece with the toxotere brought home in a drip and 21 days in between rounds. He will start the radiation after the rounds of chemo are completed. Does this sound like the same regimen? Can you tell me what to expect and give us any tips that are helpful? Thanks so much.
age 35 at DX,EBV-, HPV+,stage 4a oropharyngeal BOT rt side 1 node+/15 nodes - rt side of neck, non-smoker/drinker, induction therapy to begin 9/18/08 cisplatin,5FU,taxotere 2X, radiation to follow for 7 wks, radiation completed 1/21/09
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Terry,
It would be most helpful if you gave us more details about his diagnosis. You can do it once in a reply or update your Signature Line like most of us have done and then it will follow every post you make.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2008 Posts: 14 Member | | OP Member
Joined: Sep 2008 Posts: 14 | David,
Is this enough detail? I'm not familiar with a lot of your abbreviations. Thanks!
Terry
age 35 at DX,EBV-, HPV+,stage 4a oropharyngeal BOT rt side 1 node+/15 nodes - rt side of neck, non-smoker/drinker, induction therapy to begin 9/18/08 cisplatin,5FU,taxotere 2X, radiation to follow for 7 wks, radiation completed 1/21/09
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Terry- My husband lost all his hair from the Taxotere and was nauseated in the beginning but it soon disappeared. He also had irritation in his mouth and very dry skin.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | [quote=terryandtroy]Can you tell me how many rounds of chemo? My husband had surgery to remove the tumor on 8/13 and it was biopsied at that time. They are going to do 2-3 rounds of chemo (starting tomorrow) 5 days a piece with the toxotere brought home in a drip and 21 days in between rounds. He will start the radiation after the rounds of chemo are completed. Does this sound like the same regimen? Can you tell me what to expect and give us any tips that are helpful? Thanks so much. [/quote] Hi guys I started with chemo, then on to surgery, finishing up with the RAD's (what one here affectionately tagged it as the poison, slash, burn therapy). I wore the 5FU pump for the week I was "on the bag". They had me on 3 separate anti-nausea meds and I did fine. Kept my appetite all thru chemo. I did loose all of my hair but that didn't bother me, I needed a new deaux  Tips: If one set of anti-nausea isn't working, ask for a switch, or ask for more. Keep hydrated, drink LOTS of water, especially during the radiation treatments to follow. Keep the calorie count UP. 3000/day is a fair target. Get as much protein as possible. Before the Radiation treatment starts, get a PEG tube. I think this helped me more than almost anything else I did. Ask questions, either here in the forum or to the medical staff. If you do not completely understand, ask again. Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Terry, Where is his primary and I'm assuming nodal involvement. One side or both? Any surgery planned? Boy 35 is a lot younger than I'm used to seeing with HPV+ SCC. Where is he being treated? I think you are doing fine in the abbreviation category but here's a complete list FYI: Acronyms: BaCC = Basil Cell Carcinoma Biopsy = tissue sample removed for microscopic examination BOT = Base of tongue Brachytherapy = Radiation therapy with internal radioactive �seeds� CAT = Computed Axial Tomography (scan) CCC = Cancer Care Center CT = Computed (computer) Tomography (scan) Dives = treatments in a HBO unit DX = Diagnosis ENT = Ear Nose and Throat Doctor and surgeon FNA = Fine Needle Aspiration � (Needle Biopsy) HBO(T) = Hyperbaric Oxygen Treatments HIPAA = Health Insurance Portability and Accountability Act HN = Head and neck HNC = Head and Neck Cancer HPV = Human Papilloma Virus IMRT = Intensity Modulated Radiation Therapy Met(s) = Metastasis or cancer spread MRI = Magnetic Resonance Imaging (scan) NCCN = National Comprehensive Cancer Network PCP = Primary Care Physician PEG = Percutaneous Endoscopic Gastronomy (G tube or tube) Feeding PET = Positron Emission Tomography (scan) PT = Physical Therapist QOL = Quality Of Life RND = Radical Neck Dissection (sometimes Resection) also Modified RO = Radiation Oncologist RT = Radiation Therapy also Radiotherapy (Radio) RX = Prescription or treatment SCC(a) = Squamous Cell Carcinoma also SqCCA and sq cell ca TX = Treatment Xerostomia = low saliva XRT = X ray Radiation Therapy _________________________
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2008 Posts: 14 Member | | OP Member
Joined: Sep 2008 Posts: 14 | David,
I updated my signature some more. Thanks for the acronyms. Yes, my husband is young. I'm 40 and we have a 14 month old and a 4 year old. Our life has been thrown into a tailspin. We moved from NY to GA in 5/07. Right before we left, he had the lump in his neck checked out in Syracuse. They treated it like a sinus infection and gave him an antibiotic. They told him to get it checked out in a few months in GA if it didn't go away. Needless to say, we got wrapped up in moving, having a new baby, new position at a new office for my husband, me leaving my job and becoming a stay-at-home Mom, etc. and the lump never came about again until July of this year.
age 35 at DX,EBV-, HPV+,stage 4a oropharyngeal BOT rt side 1 node+/15 nodes - rt side of neck, non-smoker/drinker, induction therapy to begin 9/18/08 cisplatin,5FU,taxotere 2X, radiation to follow for 7 wks, radiation completed 1/21/09
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | So they did a neck dissection?
Where is he being treated?
How large was the positive node?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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