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wilckdds #80237 09-10-2008 01:02 AM
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Cookey Offline OP
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On a lighter note!!For those who may(or not) be wondering,the photo was taken before i lost nearly 80 lbs lol.


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #80255 09-10-2008 01:07 PM
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Dr Vinod Joshi posted this link on the Mouth Cancer foundation today.
http://www.medindia.net/news/UK-Den...outh-Cancer-the-Patient-Died-41590-1.htm
guess we can say the word is really spreading!!


Last edited by Cookey; 09-10-2008 01:22 PM.

Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #80258 09-10-2008 02:10 PM
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How does one see and read the comments?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #80260 09-10-2008 02:45 PM
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David
they are at the bottom of the mail online article.It shows the last three and you can click on show all.I should think carefully before you look.Some of them are so stupid it would make your blood boil.

liz

Last edited by Cookey; 09-10-2008 02:46 PM.

Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #80267 09-10-2008 03:54 PM
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I tried the "click all" but didn't see the comment I made a couple of days ago - it shows only 11 comments.

Just FYI Liz, I sent the link to the article to my dentist. He is member of the Manitoba Dentists Assoc and will circulate the article amongst his peers. He too felt that the dentists behaviour was unacceptable.

You and Robin have done a great job to spread the word. Like I said before, the impact of that cannot be measured and you are to be commended.

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #80270 09-10-2008 04:51 PM
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They still haven't posted any comments after 9/8 and I suspect that they won't.

I just can't believe that this Dr. Gibson would have made such an absurd statement that the outcome for Robin would have been no different if the dentist had caught the cancer. That really ticks me off. How the heck does he know?

Liz, I think the publicity is far from over. Please keep posting the links.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
wilckdds #80271 09-10-2008 05:44 PM
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Cookie. Post the name and address of the editor of the newspaper, especially the email address. We will just redirect our efforts. If you came across the email address of Dr. Gibson, I suspect he would get some emails as well, telling him what we all know to be true - Delayed diagnosis allows the disease to prosper and outcomes are worse. This is not opinion, it is well established by the SEER numbers. I would also work Vinod's boards for support in the email form as well.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
ChristineB #80283 09-10-2008 09:26 PM
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I also left a comment.

Marlene


Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
Marlene41 #80285 09-10-2008 10:06 PM
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http://www.dailymail.co.uk/home/contactus.html

This link shows the contact page and the editors details.

The only person from either forum to be successful getting her comment published was Angela from Congleton in cheshire who is a member of the Mouth Cancer Foundation.I tried to comment on the ****head who asked what sort of person went to the dentist with a serious ulcer,the point of note here being Robin didnt know it was a serious ulcer,surely it was up to the dentist to tell him that and send him to a doctor.
I too am amazed at the arrogance of Dr Gibsons remarks which are supposedly based on the opinion of medical experts,and regarding the appointments in October i can see they may have some foundation,but in May i cant see how his chance of survival wouldn't have been considerably higher.
A good few on the mouth cancer foundation left comments that havent appeared,i would guess that the matter is out of their news loop now.

just a matter to note.
I havent as yet received a copy of the full determination,and it hasnt been published on the gdc site although the two cases heard this week have,so i am wondering if the lawyers have responded to my e-mail strongly airing my concerns on the bits of the statement i am aware of.They said they were taking my complaint back to the general dental council who brought the prosection in the first place,

The committee is an independant one but i was a bit shocked that 2 out of the five were lay women with no medical or dental expertise,two were dentists, one was a doctor and they had a judge on the panel to give them legal direction.As i explained last week apparently robs death was not the issue in this hearing!!!it was wether the dentist poses a threat to the public and how bad they considered his misconduct to be.

I have just checked the comments on this new link,and angela has got her comment published there as well.i wonder what she has got lol.

LOOK WHAT I FOUND WHEN I GOOGLED DR.JOHN GIBSON I WONDER IF THIS WAS THE SAME MAN,HE WAS MOST DEFINATELY A SCOT


Pioneers in patient care: consultants leading change
Scotland

Dr John Gibson
Glasgow Dental Hospital and University of Glasgow Dental School
Job title: Senior lecturer and honorary consultant in oral medicine
Specialty: Oral medicine
Innovation: Oral cancer awareness pack � �Oral Cancer Prevention and Detection�

Mouth cancer is on the increase in Scotland with about 500 new cases being seen each year. In fact the number of mouth cancer deaths in Scottish adults equals the number of deaths from cervical cancer and is higher than that of malignant melanoma. In a bid to make doctors, dentists, primary health care teams and their patients more aware of the dangers of mouth cancer Dr John Gibson, who is also a qualified dentist, and his team have put together an oral cancer awareness pack.

Dr Gibson says: �There appears to be a dearth of knowledge among doctors, dentists and patients about oral cancer even though 3,500 people in the UK are diagnosed with it every year. We needed to do more.

�Although the disease occurs mainly in men over 50 it can occur in either gender at any age and unfortunately many people who develop the disease present with symptoms very late and the prognosis is poor. If the disease is diagnosed early and treated straight away the chance of a good outcome is very high.�

The pack, launched in February earlier this year, includes a WebPage and patient information leaflets, detailed guidance and a video for health care professionals on how to prevent and detect oral cancer which includes an interview with a patient who has had the disease. It was funded jointly by University of Glasgow, the Scottish Council for Postgraduate Medical and Dental Education and the Health Education Board for Scotland and has been distributed to all GP practices, dentists and community pharmacies in Scotland.

Dr Gibson says: �We want to increase professional awareness so that patients� questions may be answered more appropriately and so that they have better access to oral cancer care services. And public awareness increases too so that patients come and see us before it is too late."

The pack�s success is being evaluated. Dr Gibson says patients have reacted well to the leaflets but the pack�s best impact so far has been with doctors and dentists.

Dr Gibson says that he is motivated by the sadness of patients � mothers, fathers, brothers and sisters � who are faced with disfiguring surgery and death as a result of late presentation. �This is a cancer that can be seen by offering patients a rapid mouth examination in the out-patient setting � no fancy or expensive equipment or patient discomfort. We can do much better.�


Last edited by Cookey; 09-10-2008 10:30 PM.

Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #80287 09-11-2008 05:16 AM
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He needs to practice what he preaches.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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