| | Joined: Sep 2006 Posts: 149 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Sep 2006 Posts: 149 | I got a message that they don't want to do a full hormone panel and that I should ask my primary care physician as it's not related to the tumor.
Is it a big deal for them to request those tests
Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | How do they know it's not related to your cancer or it's Tx unless the do the blood work?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2006 Posts: 149 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2006 Posts: 149 | The PA actually referred me to an endocrinologist so hopefully they'll do the other tests.
The RO never tested TSH before Rad. So I don't know what it was before Tx.
I did not get the new results yet.
Here are some results after Tx:
About a year ago:
Total T4 7.2
TSH 0.53
Total Testosterone 146
All of these appear just a bit above the low normal.
Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
| | | | | Joined: Sep 2006 Posts: 149 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2006 Posts: 149 | [quote=davidcpa]How do they know it's not related to your cancer or it's Tx unless the do the blood work? [/quote]
I have no idea but one of the docs said that Thyroid testing only and basic blood work are
national standards for cancer follow up in patients with no active
disease.
Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
| | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | [quote=Markus]Pete,
the short term variability 0-88.5 seems strange. There is the possibility that the lab screws up the TSH assay, Although it is not likely that they are continually doing it.[/quote]
The 0.01 was in Nov06, so the doc decided to have me just stop taking the meds for a while; in Dec06, it was 0.00, but in Jan07 had gone to 88.5. He then put me on Levoxyl .050, and in Feb07 it was 47.9. Changed to .075 and in Mar07, it was 14.6. Changed to .100 and in Apr07 it was 0.66. With no med change, in May07 it was 0.12.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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