| | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Deb have you contacted the ACS. http://www.cancer.org/Perhaps they can give you an idea what to do and who to contact. M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Deb,
Please do not give up trying. Call all the local TV stations; call all the local newspapers; call your favorite radio stations and just tell them in a sincere, not angry voice what you are up against and that without the dental work, no radiation and without the radiation you will die. I'll bet you at least one of these will pick this and run with it and I wouldn't be surprised if some dentist will offer their services for free.
I forget but have you tried any local dental schools?
PLEASE DON"T GIVE UP!!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2008 Posts: 507 | Deb, I am sure the ACS can help you with this, and I would recommend you call them first, but you can also check for free Dental clinics in your area. In the Pittsburg area: Center City Health Center 2827 Bedford Avenue Pittsburgh, PA, 15219 412-687-1250 In the Philadelphia area: Catholic Worker Clinic 1826 E Lehigh Ave Philadelphia, PA, 19125 215-426-0364 For other sites check at www.freemedicalcamps.comA friend of mine is a dentist and he volunteers time at a free clinic just to help people in need like you.
Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
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