#78280 08-07-2008 11:42 AM | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | OP "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | Of late, both of my grown children have been VERY hard on me - critical and at time disrespectful. They are adult children - 25 & 27 and how I ENVY Minnie and the fabulous support from her kids who are involved and helpful.
My kids don't want to hear about it - don't really want me to discuss cancer or the treatment of cancer around them.
Is it possible that their "disrespect" is their way of purposely distancing themselves from me - and in a way preparing themselves for my demise.
This has all been VERY hurtful and has become a bit of a viscious circle - the more I feel hurt and sad, the worse they treat me. Having said all this, they are not "bad" kids. They are both productive adults who up until the time of my first cancer diagnosis almost 5 years ago treatment me with respect.
WHAT is going on? Anyone else have this experience?
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | Joined: Aug 2008 Posts: 30 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Aug 2008 Posts: 30 | Donna,
I am so sorry. I have 3 grown children and all of them deal with their fathers cancer differently as things progress.
Our oldest lives out of state with his girlfriend. He has guilt about not being around, but likes to pretend that all is well in his world therefore it MUST be good in Mom and Dads world. Its like sometimes he doesnt want us to ruin HIS day. Once they came to visit and I thought they would spend most of the time with my husband but they acted like it was their vacation. I was very angry. Now I just have learned to not have expectations.
My other two children are around their dad more and dont have the guilt. They seem to be more helpful and thoughtful.
Geezz we have best friends that have been disrespectful...so I guess kids can do the same. You know that oh you have cancer you will be better in a couple of months. What you arent well yet??
Nobody truly understands until they are going thru it.
Big hugs to you Donna!! Cray | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Donna:
You arent alone with the dissrespect from children. Its happened to me with my teenaged children, and it breaks my heart when they do that.
I think alot of kids just cant comprehend that their parents are mortal. My son is the one who drove me to chemo and radiation last year right when he was turning 18. At times he also got frustrated with the daily chore of driving me 45 minutes each way and having to sit thru my treatments. My daughter had her episodes of not understanding too but in different ways. Maybe its just that it hurts them to talk about it so they avoid the subject. Or as I like to think....my kids are just odd like most people their ages. Maybe its just how society now is, uncaring, only concerned about themselves. They werent raised that way at all.
Just like Cray said....you will be better in a couple months, then arent you better yet....alot of people think like that, not just children. Several people couldnt understand why I wasnt immediately better and would treat me like I was a big faker.
Try not to let it get you down.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | Donna,
this is what you have to do.
1) get well 2) spend "their inheritance" 3) outlive them all
A lot of people do not know how to react to somebody with cancer. ... Maybe if I do not mention it it goes away....???? So they do not call you and then they cannot call you because they did not call you before.
Think about #2
cheers
Markus
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Donna, to me this sounds like you aren't in denial but your kids are. Some kids thnik we parents are super people that nothing can stop. I would bet this might be the problem. Give em what for a couple of times and wake them up. You deserve better treatment regardless. As for mine, if I didn't take a drive on Sat or Sun aftewr church, mine would be invisble but I tell them about it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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