| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Minnie,
Lets hope you get over this crap real soon but don't rush to do to much. Also have you checked your BP lately as it may cause the dizziness.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Minnie,
It is oh so good to hear from you!!! So glad you are doing better.
I check the site all the time just to keep track of your progress.
Positive thoughts going to you on the scans!!
Take care and it is so good to talk with you,
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Welcome back to the boards Minnie - and I agree, your daughter is an exceptional young woman. Glad to hear you are feeling better and know you will be the one kicking butt in no time at all.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Ahhhhh...I feel so much better just knowing that you are up to writing to us again. I know that those girls will welcome you back with a thousand hugs. How wonderful to have that to look forward to. You go, girl! You are my hero! XO
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Minnie, It's great to see you posting yourself here, although we are all very grateful that Amy has kept us updated when you could not.
When do you hear about the scan results? I want to send some specially strong prayers that day.
I just got relesed from the hosptial after the cornoidectomy--they only kept me one night--but I am totally out of it on the pain meds so I will post an update about that another time. Let's just say that right this moment, I am back to spitting out icky post-surgical phlegm myself, and owrried about drooling without being aware I am, so I hope it helps to know you have a sister in drool. Yuck.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Minnie
I too HOPE you get those ALL CLEAR scan results !! So glad your cheering starts up soon and you have that Postitive to look forward too !!! Actually by the time I write this ..camp is over !1 LOL Kay goes to camp in the pocono's on the 16th.
My fingers are crossed for you !! And KUDOS to Amy to being such a remarkable young woman ..yet how could she Not ..LOOK AT HER MOM!!!
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Any updates on Minnie? Hoping she is well.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | I've been thinking of Minnie too. She must have had her scans by now and I'm hoping they showed the chemo was working. Anyway, if you are reading here Minnie (or Amy), you're still in my thoughts and prayers. Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Minnie, I hope you got to go back to your beloved cheerleading squad and share your inimitable brand of power with them! I hope that by now you are just too busy getting well to write.
Cheers!!
XOXO--Colleen
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | | | | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hello Friends,
It's been a rough few weeks but I'm finally getting around and even went to cheering practice yesterday and I'm going again on Thursday. I'm totally bald now but I've gotten used to it, so have the girls. I still wear something on my head when I go out, still got a little vanity left.
My scans showed that everything but one spot in my neck is gone. That spot has shrunk alot but it's not gone, so he told me I am in partial remission. He also told me that my lungs were clear and that I had quite a case of pneumonia that scarred my lungs. So, I'm going to do four more chemos (yuck) changing the taxotore to taxol, hoping that will eliminate the respiratory problems I was having with each treatment. He said once that one spot is gone, he'll call it remission and then we just wait to see when it comes back. He said that is usually does and we do chemo again, trying to keep it under control and keep it from reaching any major organs. I am well aware that I'm living on borrowed time but we just take it one day at a time and live in the moment. It hit my mom pretty hard to hear the doctor talk the way he did, she has this idea in her head that they can "fix" me and I'll good as new. She finally understands that it isn't going to be like that. I hated seeing the sadness in her face. Me, my husband and girls are used to all of this, she's not as used to it.
So, for now all is well. I go for my fourth treatment this Friday so I'll be down and out for a bit then I'll be back to say hello.
Hope all of you are enjoying these last few days of summer! My girls started back to school on the 25th and the house is way to quiet. My husband and our 17 year old (Mercedes) are rebuilding a 1965 Falcon, you all should see it. Looks like a hunk of junk to my eyes but to him and her it's a treasure.
Love to all,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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