#7799 07-07-2006 10:29 AM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | CancerCare provides FREE telephone conferences on various topics realted to all kinds of cancers. They are a toll free dial up service where you can listen to live, current experts discuss various cancer issues, treatments etc. About 3 times a year they have something related to head and neck and oral cancers. One of these is comming up. OCF has just developed a relationship with CancerCare (though you will not see us on the release as one of the sponsors of this event, but will in the future) and we are going to be working with them to spread the word about those topic dates that relate to our areas of interest. I urge all of you to sign up for this telephone conference. It is on July 19th at 1:30 EST. Two of my favorite people, Dr. Terry Day who runs the Yul Brenner organization that we work with in April each year to do freee public screenings, and Dr. Merrill Kies from MDACC to whom I refer tons of patients each year, are on the program.
In the future you will see the dates, times, and sign on information for ones related to our disease or other areas of interest like forward looking discussions of research etc. posted here by me, and I think that you will find them valuable and informative. Cancer Care is a great organization and it is a really good partnership that fits with OCF in many ways. I hope many of you will listen in. Make sure that when you do the online sign up that you put in the comment block that you are OCF members.
http://www.cancercare.org/get_help/tew_details.php?tew=asco_0719&ret=%2Fget_help%2Ftew_calendar.php
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#7800 07-07-2006 11:08 AM | Joined: Mar 2006 Posts: 26 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Mar 2006 Posts: 26 | This is great Brian. Dr. Day is the one who did my surgery in February!! I cant wait!!
Molly | | |
#7801 07-09-2006 04:19 PM | Joined: Mar 2006 Posts: 99 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Mar 2006 Posts: 99 | Brian Stephen actually has his follow-up scans that afternoon(very nervous about those - we have a follow-up with Dr. Posner right after for the results). My question is would there possibly be tapings or recordings of the conference available as I'm disappointed I'll miss it...Thanks Kerry
Kerry/wife of stephenm StageIV - Base of Tongue T4N0M0 XRT x42 / Taxol and Carboplatin x4 Tx. Finished 5/08/06
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#7802 07-11-2006 04:49 PM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | There are recordings made that can be access later, or I think can be optained as a printed piece. You need to look at their web site that I linked above and see what's what.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#7803 07-15-2006 09:15 AM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | Bringing this back to the top
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#7804 07-16-2006 03:26 AM | Joined: Apr 2006 Posts: 20 Member | Member Joined: Apr 2006 Posts: 20 | My husband missed his 3rd dose of Cisplat due to low WBC's. His last chemo is friday 39 in all. I wonder if he should skip the 3rd dose of chemo. MDs state research is based on 3 doses but the side effects seem worse than the chances of just going with 2 doses. Anyone out there have any advice? | | |
#7805 07-16-2006 12:37 PM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | lauriern. If you post your message to the bottom of someones existing thread, instead of starting a new post about you and your question, it is going to get lost and no one will find you and reply. I would have emailed you about this, but you have the email function of your profile turned off. That makes it impossible for anyone (incluiing the board administrators) who wants to say something private to you to do so, and prevents them from contacting you with information that they might not want to have on the public board like phone numbers, doctor's names, etc. Please start a new thread in the treatment forum, and when I see that you have done that I will delete your original message.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#7806 07-19-2006 05:07 AM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | Today is the day for the cancer phone conference...DO NOT MISS IT. If you haven't signed up yet it is free and the link to the sign up area is on the first posting in this thread. 1:30 EST
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#7807 07-19-2006 06:13 AM | Joined: Mar 2006 Posts: 62 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Mar 2006 Posts: 62 |
caregiver to Gil dx SCC 11/05 T2N2M0 finished tx 3/10/06 stage 4 rt tonsil,BOT,2 lymphnodes,35IRMT,6 chemo
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#7808 07-20-2006 02:16 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Brian,
Thanks for giving us the opportunity to join in yesterday. It was very informative and I was in awe that some 750 people chose to be a part of the audience. It certainly helped me understand some of the lingering issues from the chemo and radiation and to accept that some things will never change.
Thanks again for all you do.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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