#77654 07-29-2008 07:21 AM | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Not a big deal, but has anyone else experienced an increase in muscle aches after exercise? Aside from old age, I find that after playing golf, mowing the lawn, or doing other exercises, I tend to have more muscle aching than I did prior to treatment. I know that some is due to the nerves in the neck/shoulders after the ND, and some is due to the fibrosis, but just curious if anyone else had noticed a similar phenomenon?
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
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Joined: Feb 2005 Posts: 2,019 | I have a more achey neck and shoulders which is probably related to the neck dissection. Other than the fact that I got out of shape during treatment and had to regain some muscle as I healed, I can't say I have noticed other muscle aches.
Here's another "not a big deal" one that was brought home to me on a recent hike. Ever since chemo, I have noticed that my sense of balance is not quite what it was. It's not that I'm unsteady on my feet in normal circumstances but, for example, am much less steady when hiking up or down a steep rocky trail where sure-footedness is necessary. Even going down steep or slippery stairs--I'm a bit slower and shakier and if I loose my balance, less able to recover it. Cold be just age I suppose but I'm guessing it is somehow related to the cisplatin.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Nelie, I also have noticed a slight tendency to stumble more frequently! I can play golf and such, but every now and again I will find myself taking a misstep and the foot/ankle kind of go 90 degrees sideways. Maybe old age, but I prefer to blame Cisplatin.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
I dont have the muscle aches like you described. I do suffer from being a little off balance. I was never the most co-ordinated person, now Im just plain clumsy. I also thought it was me getting older.
Do you ever get a little dizzy? That happens to me almost daily sometimes a couple times a day.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Hi All- my husband has been complaining recently of muscle pain. I think it's because I try to get him off his butt to walk with me once in awhile. He has never been a regular exerciser and he won't go everyday so I'm hoping that it's for that reason he is sore afterwards. It could also have to do with the fact that he gets all his nutrition thru the PEG. That has to wear down your muscle mass even though he has gained back a few pounds.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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Joined: Sep 2006 Posts: 8,311 | I have never experienced any unusual muscle aches from strenuous exercise post Tx but I do find that I now sometimes must quickly look down before I take a step down a flight of stairs, like midway through, because I feel a bit disoriented like my mind has forgotten the stepping sequence. I also get dizzy or dizzier when I twirl around and around playing with my dog. I mean I'm dizzy now when I twirl around even once fast.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Joined: Jun 2007 Posts: 5,260 | I have the achy muscles, in the neck , shoulders andin my rump. I have np padding there since I lost those pounds. As for balance, LOL I seem to be off balance a lot lately and have to be careful.Like you said Jeff, it must be old age.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Joined: Jul 2007 Posts: 939 | Bill has the same thing...we thought it might be related to low blood pressure..his is always a bit low.
He has a rough time bending over and then coming up without getting dizzy..has to stop a minute and get his bearings. Never had it before treatment and his BP was somewhat low then.
Looks like someone needs to do a study of this... apparently affects a lot of folks and might be related to OC treatment. Hmmm???
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Deb:
You mentioned low blood pressure. How low is it? Has Bill lost alot of weight and kept it off? Anybody else have that too?
My blood pressure had been running terribly low like about 74 over 56 for several weeks. Since I started HBO its now up into to a more normal range about 100 over 70. You are right its odd with so many OC patient stating there are residual side effects of aches, dizziness and maybe low blood pressure.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | I experienced very low blood pressure and fainting after my treatment for lymphoma. The docs thought it was mostly dehydration and encouraged me to eat salty foods and drink more water. It did pass though as I recovered from that treatment and put weight back on. My electrolytes were constantly out of whack.
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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