| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Thank you for keeping your OCF friends updated. We are all praying for a positive outcome for your family. Of course you would be upset about police monitoring Robin's grave. This is being intrusive to you and taking away your privacy. Lets hope Paul is found quickly so you can have you day of mourning in peace.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2007 Posts: 44 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2007 Posts: 44 | [quote=Cookey]Is he never to get peace?
[/quote]
I just have to again say he isn't there at the grave. He is at peace. I hope you find peace too. | | | | | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Liz, I just read and caught up with you. So Sorry to hear about Paul missing. I pray someone will have something that will help find him soon. I will pray for Paul, may he find some peace in his journey that he has started and return home. You take care!! Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | | | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 446 | Liz,
Draw on the incredible inner strength of spirit that we saw develop and flourish last year during Robins struggles. Peace is there and acceptance of what is to be can be found in your heart. I will also be praying for a good outcome and I'm secure in the knowledge that you will make it through this latest challenge. You know you can overcome anything with your friends behind you, and all of your friends here are behind you 100%
Take care. You're a strong lady and together we will get through this
Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | OP "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 |
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | OP "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | The search revealed nothing,but the police have received a report of a man seen walking down the highway at 5.30 am last Saturday.
My gut is churning in fear that tomorrow will see the end of this nightmare,because i dont believe if paul is still alive that he wont get in touch,buti know that without his phone he wont have my number.
Although robs ashes are buried in Hampshire with his father,i thank god that i will be going to my own memorial that is in the cemetery here in yorkshire.My mind will be distracted though as i will be filled with the images of police lurking in the trees surrounding the old village church in Hampshire,and i feel so angry that Robs daughter and cousins,nephews and nieces will all have to deal with that head on.
How the hell could Paul sully Robs memorial day like this,after all we went through together last year,and my mind is filled with pictures of Paul sitting by Robs bed stroking his head and whispering things to him as his life ebbed away.
In another part of my head i pray that i will drive to Harrogate tomorrow and find Paul sitting by Robs memorial here in Yorkshire ,or at least something to let us know he has been here.
I am working at the hospice tomorrow.so at least i will be in my own safe world for the day.
thanks for all your wonderful words and support.At least i know the family i have here will never hurt me,or desert me.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: May 2007 Posts: 44 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2007 Posts: 44 | Paul must be in so much pain. I understand your angry but please try not to let that over shadow everything. He didn't set out to sully Robs memorial day. It seems to me he was just in so much pain he could think of nothing or no one but getting away from it. I know the feeling.
I think you need to think of how Rob would feel if he was here, I'm sure if he could help find his brother he would gladly. Try to think of them watching his grave as Robs way of helping his brother. | | | | | Joined: Sep 2007 Posts: 79 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Sep 2007 Posts: 79 | Liz, my prayers are with you. I hope that you can find peace over the next couple of days.
Jean
* Root for Joe *
Sister of Joe (43, non-smoker/chewer; occ. drinker). Mouth problem 3/07. Diag with Stage I 6/07. Diag with Stage IV 9/07. In EPOC at Univ of Chicago. Cisplatin/cetuximab 1/wk x 8. Then, IMRT 5x/wk x 7 and weekly chemo. Done 12/21/07. Looks good as of 4/08, 7/08, 8/08, 1/09.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | OP "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 |
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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