#77439 07-24-2008 01:26 PM | Joined: May 2008 Posts: 43 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2008 Posts: 43 | went and camped out at doctors to get seen (see previous post) He looked at it got radiation onc on phone now they have switched me to getting just cisplain (sp) everyday, weeks 1,4 and 7 with radiation everyday and twice on fridays. I was on Erbitux carbo platin and taxol but during my break tumors flared up (see previous post) So now i have to find out about this new treatment of just cisplain. Ive read that people get it but usually with 5fu and something else i asked why im not getting 5fu or anyother chemo mix and he said too many bad side effects i want to be cured i really feel im just getting what they have to give me that will cause the least problems for them.
Tonsil into base of tongue 3to4cm tumor. Giant lemon sized 9cm lymphnode. Squamos cell carcinoma
April 5 diagnosed. June 5 started treatment. Cetuximab Carboplatin Paclitaxel once a week for 6 weeks.Then 7 weeks of radiation plus chemo cisplatin then 4 weeks rest then neck disection was Nov 7 2008
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I just had Cis but it was concurrent with my radiation. I had three BIG bags every 3 weeks and the last 2 were pretty rough but now most seem to get smaller weekly bags and it appears it's much more friendly to the body.
Watch out for the ringing in the ears. Discuss this with your MO before Tx.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Victor,
Super that you got someone to look at you.
I think regarding the chemo....you have to think about the fact that it is simply a tool to help the BIG GUN (radiation) have the greatest impact. The chemo makes the cancer cells more sensitive to radiation. I am sure those with more technical expertise will chime in on this...it seems everyone on this board has different treatment regimens.
Yes, Cis is ototoxic so be aware of hearing issues which usually shows up as ringing in the ears. So far, it doesn't seem to have damaged my Bill's hearing.
Victor, do you have a caregiver...someone that can fight these battles for you when your treatments begins to take a toll on you?? Starting about week 4 of your rads...you will not feel well and will need someone to turn to for meds, food and water. Someone will need to calculate your intake of all the above and keep it at an optimal level. I hope your have someone.
You are smart to turn to this board for answers...we will tell it like it is..and help you keep you sanity.
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
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