| | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Liz, my thoughts are with you...life's not fair some times.
Tizz
End of Radiation - the "Ides of March" 2004 :-)
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | OP "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | How very odd that one year on, this forum is keeping me sane again.Answering Pms keeping up with everyone on the boards and now the new face book site makes the time fly by.Going to work in the hospice yesterday was great,and my boss gave me a job to do that took my mind of things totally,as i collated results from a survey we had done,that needed turning into a statistical analysis.it wa 4pm before i realised,and when i got home i was exhausted.After checking in here and also checking the police,radio and television sotes i was ready for my bed.Pauls estranged wife rung and told me the police have moved their search down to cornwall ,and are searching a village that robin and his family went to every year for their holidays just in case paul hitched a ride down there.
We are expecting the news to hit the media big time today,and all the local shopkeepers in the village have posters and pictures in their windows.Pauls step daughter has formed a group on face book appealing for any sitings,and as of 4 am this morning 284 people have joined.Like robin,Paul has lived in Headley all his life and the support from friends and extended family is phenomenal.
to all of you ,my very special family,thank you so much for allowing me to use this board to unload again your messages are keeping me in once piece yet again.
malka your prayers are much appreciated.
David as a year ago your gentle hand slap makes me smile and pulls me up.
Bill i sent you a short e-mail on tuesday just to say i will write soon.
nelie you have enough on your own plate so your thoughts are especially gratefully received
paula,sue,joy,neomi and all who have pm'd me,cheers girls,you are doing great.
Helen i wish bren was here!!!!
i am going to check the media and police sites again,and the i will get ready to go to the hospice
much love to you all
liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Liz,
Sounds like a tough time, I can't even imagine. Sending good thoughts your way and hoping that he is found soon.
Lots of Love,
Margaret
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | OP "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Thanks margaret
there hasn't been one word of news.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Liz, Ive been praying for a good update on Paul. Sorry to hear there is no news yet.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Oh Liz... I am so very sorry. I only just read this thread and can only imagine what you must be going through right now. Please know that my thoughts and prayers are with you. I will be waiting to hear if there are any new developments. Your OCF family is enveloping you with love right now. I hope you can feel it.
Last edited by LarrysDaughter; 07-23-2008 11:27 PM.
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | OP "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 |
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Has there been any word?????
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hello Dear Friend.
I haven't been on in a while, so I just now read this thread.
My heart goes out to all of you, especially Paul. I don't know how you manage to be as strong as you are...thank God for that inner strength that you have. Can you email me the facebook link? Jackie has friends in Ireland and in England, can't hurt to broaden the search, and it would make me feel better to know that more people are thinking about you and praying for you and the family.
Much love and Peace to you.
Donna
P.S.
I was thinking of Brenda today, I just said to my girls last night how much I miss her.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | OP "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | hello Ginny and donna
no there is no news.I was speaking to Robs cousin last night and apparently the local paper have made it headline news,and the village has been saturated with posters and pictures.the face book site is called
PLEASE HELP FIND MY STEP-DAD PAUL READ.
There have been nearly 400 hits ,but most are just messages of support,which is lovely,but no sitings.there are pictures of him there and you can access the site by clicking on my profile in the OCF site if you are one of my friends,and then clicking on the group in my personal page.Alternatively just use the face book search facility
thanks for the concern.
love liz
Last edited by Cookey; 07-24-2008 02:45 AM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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