#77135 07-18-2008 03:51 AM | Joined: Jul 2008 Posts: 21 Member | OP  Member
Joined: Jul 2008 Posts: 21 | Question... I'm a never-used-tobacco person just diagnosed with Oral Cancer... does this mean that my wife should be concerned about having the HPV or worse?
Age 37, low grade mucoepidermoid carcinoma of the upper right palate 7/15/2008, Never Used Tobacco, runner (3 marathons!), Shorin Ryu Karateka, Husband, Father of three (8,5,3)... and does this mean I can go skydiving now?
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Many cancers are of unknown origin. You should be hearing from our HPV experts soon. Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I'm not an HPV expert by any means but I have been interested in it ever since since I found out it tried to kill me. I haven't heard of HPV being associated with that particular cancer but your slides can be tested. There are several testing spots in the U.S. and Johns Hopkins is one. It is also not clear how one acquires the HPV virus but by age 50 80% of us show that we have come in contact with it and fortunately most of our immune systems effectively deals with it and it never becomes a problem. Out of the 100 known strains of the HPV virus only 4 have been associated with cancer and out of those 4 only 2 are associated with cancer in the Oral Cavity. Even though tobacco and HPV accounts for the majority of cancers in the OC there is a small percentage of cancers that are presented without a identified cause. There is a great deal about HPV that can be accessed on this site as well as a great deal of information on Oral Cancers.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | I was just following another link that Brian had posted today and came accross this which should answer a lot of your questions. http://www.oralcancerfoundation.org/about/pdf/Editorial_Hill_07.pdf
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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