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Joined: Jul 2007
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Posts: 939
Kevin,

I think we have a new saying:

"DOWN WITH THE GOO!"

I needed that saying when Bill was in the throes of twice-a-day radiation and once a week chemo and had to sit for 15 to 30 minutes after each feeding to keep it down. It was like having a newborn...feeding every 2 to 3 hours in between trips to the doctors. I remember feeling very accomplished upon reaching 9pm having poured 6 cans of supplement, multiple ounces of water, varying meds and driving twice to the RO's office. Thank God for the GOO!

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
Joined: Jul 2007
Posts: 939
"Above & Beyond" Member (500+ posts)
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Joined: Jul 2007
Posts: 939
Margaret,

Glad that you were encouraged. Bill didn't have an easy time during treatment and actually wound up in the hospital during week six after developing a fever and low blood counts. But he just seemed to get better after that and never looked back. I don't know if the extra IV hydration made a difference or the antibiotics or him just being a tough guy, but he just quit needing the pain meds at week 7 and never looked back. In fact, he went off the fentenyl patch and didn't want the liquid morphine and had about three days that he couldn't sleep from the withdrawal.

It was a glorious day in October when we delivered those cases of Nutren to the RO's office...we were so glad to be rid of them and so happy that someone could use them. I tried to return them to the company but they said just to donate them.

Sorry to hear about your Mom...I hope that it was just a little warning stroke and she can take some meds to ward off more. Caregivers are under a lot of stress that we don't communicate..we feel lots of pressure to make good decisions..it takes a toll.

Hugs, Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
Joined: Sep 2006
Posts: 8,311
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Even if I had to pay for the VHC, which I did at about $30 for 24 cans, I would still consider using them at 560 cals per can. My time and inconvenience was worth that to me. I downed that stuff for over a year post Tx.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: May 2007
Posts: 621
"Above & Beyond" Member (500+ posts)
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Joined: May 2007
Posts: 621
[quote=debandbill]
I think we have a new saying:

"DOWN WITH THE GOO!" [/quote]

I hope someone is keeping track smile


9 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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