 
#7605 06-10-2006 08:29 PM | Joined: Feb 2006 Posts: 9 Member |  Member
Joined: Feb 2006 Posts: 9 | Dear Danny, since finding this sight, I have come to rely on your encouraging words as I've been going through this journey with my fiance. My heart goes out to you; along with my thoughts and prayers.
Ms. Ann | | |
#7606 06-12-2006 07:22 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Danny
Thanks for letting us know how you are doing and my prayers are with you. We look forward to hearing from you for a long time. Hang in their. You are a great inspiration so keep it up.
SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
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#7607 06-17-2006 02:39 PM | Joined: Jun 2006 Posts: 3 Member | | Member
Joined: Jun 2006 Posts: 3 | Danny: You have been a big inspiration to me. I haven't been on this website for a while - my computer died & I lost my password. However, you have been on my mind and I have wondered how you were doing. You have been very open about sharing your feelings & experiences and it has helped me understand my brother's experience. Thank you so much for sharing.
I wish I could say my brother is doing well but he isn't. LIke you, he has had a reoccurence. Like you, he has not responded well to the chemo. He isn't yet on palliative care, but it is just a matter of time. He made it just a little over two & a half years (he was stage IV, tongue cancer) before he developed lung cancer. You are a very special person and you have dealt with this horrible disease with grace and you have helped us caregivers understand a bit more what you and our loved ones are going thru. Thank you, Candace, sister of a beloved brother who had stage IV tongue cancer, now has stage III-b lung cancer | | |
#7608 07-02-2006 07:04 PM | Joined: May 2006 Posts: 57 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2006 Posts: 57 | I've often wondered:
What do we feel when the wind is no longer to our back, and we give up trying to understand "why"? Is it really given to us, and we understand what this life was for?
I have to think so...only because I've met a few people like you.
Danny, you are a special person to me and so many others here.
Come see me, ok? I'll be waiting in my dreams for the answers.
I love you,
Mandi
Stage III tonsil, Dx 8/14/2002,chemo and rad...reoccurance 8/3/07,Base of Tongue,vocal cords,stage IVA,total larynectomy and glossectomy 9/4/07 with pec flap...reoccurance Nov. '08 and Feb. '09 (positive margins remained after each operation) Second pec flap May 7, 2009. Still positive margins.
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#7609 07-04-2006 09:05 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Danny,
just bringing this back to the top to let you and your beuatiful family know how much we love you and are thinking and praying for you and them.
Gary & Leah Allsebrook
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#7610 07-05-2006 01:22 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Danny Boy, you are always in my heart, prayers go out to you and much, much love. Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#7611 07-05-2006 10:33 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Always thinking of you Danny, love to you and your family from Helen
RHTonsil SCC Stage IV tx completed May 03
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#7612 07-06-2006 02:22 PM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Danny,
Charlie and I just wondering how you are doing. Always hoping it is well. Our love to you and your family.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#7613 07-10-2006 04:31 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny Boy,
Just wanted to let you know how much we love you and your wonderful family. I am so sorry the battle has been so vicious. You are a warrior.
God bless,
Ed and Susan
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#7614 07-12-2006 09:32 AM | Joined: Sep 2002 Posts: 24 Member | | Member
Joined: Sep 2002 Posts: 24 | Has anyone heard from Danny boy?
JU
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