| | Joined: May 2008 Posts: 29 Contributing Member (25+ posts) |  Contributing Member (25+ posts)
Joined: May 2008 Posts: 29 | WONDERFUL NEWS!!! SO GLAD TO HEAR THE UPDATE, HOPE YOUR HUSBAND RECOVERS QUICKLY AND BEST WISHES TO YOU AND YOUR FAMILY!
ameloblastoma, upcoming total maxillectomy
| | | | | Joined: May 2008 Posts: 73 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2008 Posts: 73 | Hey ! tats a really good news ! dont worry he will recover soon 
- Avinash
My Father,
Age 59, T2N1M0, Stage 3, smoker left 5 years back, casual drinker , NACT with TAXOL +5FU+Cisplatin x 2, and 70 Gy in 35# from 03/10/08 to 04/26/08, no surgery, After Chemo cycles tumor reduced 60%,
Cancer Free now !
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2004 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2004 Posts: 104 | Hello Kum's wife,
So glad to hear your husband is doing well, it is a relief when the surgery is over and the healing can begin.
My father has battled twice with scc in the buccal mucosa, right side only. He had the neck dissection with his surgery. He continues to get better, and can now eat whatever he wants.
Wishing you and your husband the best recovery.
Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"
| | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Great news!! Thank you for letting us know that the surgery went well and Kum is doing well.
We are all praying for him and your family.
If we can answer any questions or offer advice please let us know.
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Kum, I have you in my prayers and wish you a speedy recovery.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Jim,
No one would every confuse you with a whiner!
Kum,
Best of luck...get better soon.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Oct 2008 Posts: 6 Member | | Member
Joined: Oct 2008 Posts: 6 | hi,
Not sure if anyone is still accessing this frum. I am a CG to my mum53, with SCC of Buccal Mucosa, Stage 3, received radiation for 45 alternate days in Hyd, India.Unfotunately had a recurrence after 3 months, and now refused to take chemo or surgery.On alternate medicine now- Intravenous Vitamin C. Wanted info on Therabite for her situation unable to open mouth.please reply if anyone has answers.thanks
seema | | | | | Joined: Sep 2008 Posts: 250 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Sep 2008 Posts: 250 | Seema,
I don't know anything about Therabite and have not heard of IV Vitamin C for treatment of oral cancer. I'm sure others more knowledgable than I will get back to you on this soon.
Why is she refusing chemo or surgery?
Lani
SCC part glossectomy 3/06, recur 8/06 glossectomy, floor of mouth, part of jaw removed, RT/chemo thru 10/12/06, PET clear 7/08
"A bend in the road is not the end of the road, unless you fail to make the turn"
Passed away 12/14/08
| | | | | Joined: Jun 2008 Posts: 309 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 309 | Seema, you may wish to post a new post under introductions, so this one does not get lost in the shuffle, as this is another person/topic.
I do not have the answers you need, so will leave input to the experts and I am sure someone will respond soon.
Best wishes and I hope your mothers choice of action proves positive for her. I figure when you love someone you support their decisions even if you do not always understand / agree with them... I would encourage her to educate herself and then let her decide her course of action.
God bless
Rita - Age 44
wife, mother of 4 - ages 3,16,21,24 & grandma to 1
(R upper) Maxillectomy 8/8/08 - UW / Seattle, WA.
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"Those who think by the inch and speak by the yard, should be kicked by the foot."
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