#75328 06-07-2008 12:53 PM | Joined: Mar 2008 Posts: 67 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Mar 2008 Posts: 67 | Hello all,
I finished radiation 5/7/08 and am home alone this weekend. For the last couple of days I have been able to feel a small bump/lump at the base of my tongue. Now I am getting myself all worked up thinking that it could be another location of SCC. I already have an appt. with my chemo doctor on Tuesday but just wanted to reach out to people who understand my fears. Yesterday I was just thinking it was one of those temporary irritations that sometimes occur inside the mouth that go away in a short period of time.
Has anyone else had this experience?
Frank
SCC Right Tonsil Dx 2/25/2008 at age 43
T1N2B M0,Stage IVa
8mm primary removed 3/5/08
4cm lymph node removed 2/22/08
2 additional sub cm nodes
Tx at Stanford: 30 x IMRT, 2 x Cisplatin,
Started radiation 3/27/08, Completed 5/7/08
p16+, HPV 16+
2 Year Post-TX PET CT 5/10 - CLEAR
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Frank,
I didn't experience any unusual bumps post Tx but you are wise to get it looked at. At the same time try and not worry to much about it. It is what it is and worrying now isn't going to change it. If it was me I would want my RO or my H & N surgery doc to look at it as opposed to my MO.
Good luck and lets hope it nothing.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | I've had bumps that were just due to some irritation post-radiation. You really aren't that far out from radiation so that certainly seems to me to be a possibility but, as David says, it's a good idea to have it looked at. Can your MO do a scope of your throat? If, as you said, this is on the base of your tongue, not the oral tongue, I agree with David the MO might not be the person to give you the final all clear. But I'm sure she or he will send you on to the right person if necessary.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | I do understand the anxiety and the hypervigilance about each and every bump, change or sensation in our mouths. It's a natural state of emotion after recent experiences. You are already taking the right steps, see your doctor and let them determine what's up. Hang in there, Tuesday's almost here.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Frank,
I'm not saying that what you noticed is nothing, but there are anatomical bumps on the tongue that are always there. Sometimes people, even those that never had cancer, happen to notice these bumps suddenly. I am hoping that what you feel are just papillae that have always been there.
Please let us know what you find out and good luck.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Frank,
Ditto on Jerry's response.
We are all pushing for ya..keep the faith!
Cheers,
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
| | | | | Joined: Mar 2008 Posts: 67 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Mar 2008 Posts: 67 | All,
Thanks for your words of encouragement. I needed them over the weekend. Fortunately, the bumps I was concerned about went away on their own. I still mentioned them at my Doctor's appt. today and he told me that I would see some post-radiation bumps periodically. He gave me an "all clear" after scoping me and feeling with his hands. I was pleased with the appointment and wanted to share the good news with you all. Thanks again.
Frank
SCC Right Tonsil Dx 2/25/2008 at age 43
T1N2B M0,Stage IVa
8mm primary removed 3/5/08
4cm lymph node removed 2/22/08
2 additional sub cm nodes
Tx at Stanford: 30 x IMRT, 2 x Cisplatin,
Started radiation 3/27/08, Completed 5/7/08
p16+, HPV 16+
2 Year Post-TX PET CT 5/10 - CLEAR
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Fabulous news Frank. I'm glad things turned out the right way for you. It's always easier to ask questions and be told everything is okay than to overlook something. Good for you.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Great news Frank. We all have had post TX scares especially within the first six to eight months and thankfully most turn out to be nothing.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Frank, That exact same thing happened to me when I was just a little ways out from treatment. I'm glad you checked with your doc and glad it turned out to be false alarm!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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