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#74830 05-24-2008 08:32 PM
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Jim had his PET scan on Friday...now it's just hurry up and wait. He is into his 12th week of Erbitux. His leg is still hurting a great deal and walks with a lot of pain. His RAD Dr. told us that he had expected the pain to be gone by now, but that some patients take 6 months to be free from pain. We went to visit his parents today and on the way home he told me that the pain he is feeling is tumor pain and that I needed to get prepared. He said that if the cancer is back, that he will escalate the remodeling of our house so that we can move in by September. Please pray for him as we await the news.

Paula


Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009
Lost the battle November 23, 2010
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Paula,

I'm sending positive thoughts and energy your way. The waiting is the absolute worse. Here's hoping he's wrong about the derivation of the pain...we all heal at different rates.


Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
Suess57 #74835 05-25-2008 04:29 AM
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Paula- my husband had a lot of pain in his leg when on the Erbitux. He walked with a limp at one point. He is now on a different chemo and the leg pain is gone. I really hope this is just a temporary side effect for your husband as well. I'll be praying hard for you. Hang in there and keep us posted.
Sue


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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Tell him not to be so negative. I believe our mental state can play a huge role in dealing with cancer. We all suffer till our results come back and logically it just doesn't do any good to be negative.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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It doesn't sound like he's being negative David, it sounds like he's in pain. Constant pain can bring our spirits down and make it difficlt for us to be optimistic. Sounds to me like he is trying to deal with the pain, giving his opinion on what he believes the pain is and then making plans for the "worst" case scenario. I think he's being very realistic about it all!

I would be surprised if the pain in his leg is from a tumor, I had the majority of my pain in my leg, so let's hope his leg is fine.

Minnie


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
minniea #75120 06-01-2008 08:22 PM
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Thank you, Minnie. He is in excruciating pain and it has worn him down. We took a short trip over the weekend to go see my mom in Louisiana and on the way home today, I got very sleepy and asked him to drive...he did so for about 30 miles and had to pull over, because the pain was too much. He is used to pain - since he lost his leg at the age of 16, he has more than his share, believe me. The pain has definitely taken him down a few notches, but he says, not to worry, he is fine. We go back to the oncologist on the 16th. I think that is a long time to wait for results, but they told us that if we didn't here from them, then "no news is good news". He is going tomorrow to see if they can do anything for his prosthesis to give him some relief. I'm worried that the pain that he is feeling is due to him fracturing his leg, lifting his prosthesis as it in itself is very heavy. Please keep him in your prayers...


Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009
Lost the battle November 23, 2010
Joined: Dec 2006
Posts: 147
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Results are in - it is bad news. The cancer has moved into his back. We go tomorrow to do an MRI to see how much has spread, then meet with the radiation Dr. then on Friday another MRI....I am heartsick. I don't know what to do or where to turn at this point. So I just type to my cyber friends. Please pray for us.

Paula


Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009
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Paula, I am so sorry that the news is not good. I know that you are devastated.

I am praying as you asked....

Hugs, Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
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Paula,

I will certainly pray for Jim. My sister has stage IV breast cancer which has been in her back and sternum for about 4 years. She has been on chemo and like the Cheshire cat, the spots come and go. There have been months when there was nothing at all. I hope that Jim will have relief from the pain and a succesful outcome.
Malka


SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
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Malka #75237 06-05-2008 06:57 AM
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So sorry for the bad news. What do the doctors say about treatment?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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