#74529 05-17-2008 08:04 AM | Joined: Apr 2008 Posts: 117 Likes: 1 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Apr 2008 Posts: 117 Likes: 1 | On Monday I will go in to get mask and begin mapping. I am struggling to keep my mind on what I need to get ready.
I wasn't even going to post this, but I hope that posting will help me realize this is all real.
Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
| | | | | Joined: Jan 2004 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2004 Posts: 104 | Hi Andrew,
I'm glad you let us know that your treatments are beginning.
I hope that you can focus your attention on getting good nutrition and fluids, staying positive and getting lots of rest. We're here for you.
Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Andrew,
IMO, regardless of how much you weight and especially if you are close to your "ideal" weight, eat, eat and eat as much as you want and don't worry about the fatty stuff. Eat all your favorite foods and savor every bite because soon after the IMRT begins you will most likely loose all taste for a very long time. Believe me it's hard to comprehend eating without the pleasure of eating but that's what you will shortly be doing and in my case it was 16 months post Tx before my taste came back to an acceptable, though not perfect, level.
If you haven't been fitted for dental trays I would definitely consider them. I started using mine 1 month prior to Tx and I still use them and probably will for the rest of my life. I also didn't get a port and if I had to do it all over again I would get one.
All through Tx you need to consume as many calories and as many ozs of water as your medical team tells you to. Try to do this every day. Only good things will come from this advice and you will make it tougher on yourself if you don't. I speak from stubborn and painful experience.
Ask as many questions as you feel like and complain when you need to. We have been there and we can give you much needed support. Just remember one thing....as tough as it may get, you will walk out of that dark tunnel and you will recover and in the scheme of your life this is a very small piece of time.
Good luck.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2008 Posts: 73 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2008 Posts: 73 | David said it all  BEST OF LUCK Andrew !!! Please do keep sharing ur treatment details here along with whatever questions you have, there are alot of ppl here who can help you in every stage of ur treatment, actually we all are.
- Avinash
My Father,
Age 59, T2N1M0, Stage 3, smoker left 5 years back, casual drinker , NACT with TAXOL +5FU+Cisplatin x 2, and 70 Gy in 35# from 03/10/08 to 04/26/08, no surgery, After Chemo cycles tumor reduced 60%,
Cancer Free now !
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Andrew- Best of luck to you! You'll get some great advice here.
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Apr 2008 Posts: 117 Likes: 1 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Apr 2008 Posts: 117 Likes: 1 | Thanks for everyone for your messages. This is all very helpful.
Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
| | | | | Joined: Jul 2005 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jul 2005 Posts: 207 | You can so it Andrew. It is a tough treatment, but manageable. Take things one day at a time.
Steve
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Andrew, I hope your treatments are going well and you are getting used to the mask. We're thinking of you here!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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