| Joined: Jul 2007 Posts: 13 Member | Member Joined: Jul 2007 Posts: 13 | I sympathize with what your going through. I highly recommend rethinking about cutting the cancer out of the mouth. I had a hemiglossectomy and know how hard the decision is. I truly believe the surgeries I had saved my life. Best of luck to you.
Kurt 25 yr old. Dx 11 July 07 originated in tongue Stage IV. 3 surgeries had clear margins Had a hemiglossectomy 13 Aug and radical neck disection - Left side. chemo/rad Started 24 Sep 07 Finished 7 November 07-Never Smoked Drank on special Occasions
| | | | Joined: May 2008 Posts: 73 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: May 2008 Posts: 73 | try Betadine gargle , it helped my dad in keeping his mouth clean and odour free. But please consult ur doc regarding the same , cause hes the right person to solve this.
- Avinash My Father, Age 59, T2N1M0, Stage 3, smoker left 5 years back, casual drinker , NACT with TAXOL +5FU+Cisplatin x 2, and 70 Gy in 35# from 03/10/08 to 04/26/08, no surgery, After Chemo cycles tumor reduced 60%, Cancer Free now !
| | | | Joined: Feb 2008 Posts: 6 Member | OP Member Joined: Feb 2008 Posts: 6 | I will definitely pick up some Oasis or Betadine to see if it helps my daughter. As for surgery, I'm not sure why she has decided against the surgery. I think it's fear and exhaustion. She is tired. She will be on a feeding tube the rest of her life (and has been since April, 2007). She has lost so much weight and has little energy. She is loosing her voice. It is now so difficult to understand her. She is having a hard time accepting that she must write things down. I don't know that surgery is even an option at this point. It is such a sad process to see the cancer eat away at her.
I do appreciate all of your comments. | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I forgot I lost a part of my tongue and had a left neck radical dissection. Then I was pronounced cancer free, but man did they blow that one. Just like your daughter, mine came back in less than 2 months and was on both sides of my tongue. After that is when the teeth went and I started rads and chemo for the tongue implants. Wish I could talk to your daughter and convince her that she has a chance to beat this nasty stuff. I supposedly have won this war.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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