#73587 04-24-2008 10:07 AM | Joined: Jun 2007 Posts: 32 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 32 | Last week was my year anniversary from my surgery.
I'd been feeling pressure in my right nostril and aching in my left ear so my Oncologist ordered an MRI of the neck and brain. This week I'm told the MRI found inflammation beyond the roof of my mouth. After examing the area, my H/N doctor assured me it is not an infection and is pretty sure it is benign, but to be sure he needs me to see the Head of H/N surgery and it "may" or "may" not need to be biopsied.
To say least, I'm worried and not to excited about waiting to see the doctor. I really want to know what's going on. I laugh that they call us patients because I don't have much right now.
Donna; Age 50, dx w/ Stage 2, muco epidermoid carcinoma 4/07, maxiolectomy of the upper right palate 6/07, clear margins, no radiation or chemotherapy, close follow-ups.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Lets keep hoping for the best.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I would want it biopsied to be sure. I juat went thru the same thing below my right ear a couple of days ago and am awaiting the biopsy report. The biopsy wans't the greatest thing to hurt I have had and it was well worth it. If it's negative I'm finished with surgery for a long time and if it's positive, I have to have the right side done like the left was in August.. I hope yours go well too Donna.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Donna:
Best of luck to you. The waiting is always the worst part.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | Donna - good luck to you. I'm sure the anxiousness and waiting are very tough, but I would want a biopsy too and I think the anxiety of thinking what if would drive e a little bonkers if they didn't biopsy.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Donna- I'm sending positive vibes your way!
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2007 Posts: 163 |
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
| | | | | Joined: Jun 2007 Posts: 32 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 32 | Thank you so very much...I Just LOVE Everyone in this forum. The most wonderful, unselfish people I've ever met. With all you have to do you spend time reassuring others. I will request the biopsy and let you know how everything goes. Love you all.
A Million Thanks.
Donna
Last edited by froggiegirl; 04-26-2008 08:33 PM.
Donna; Age 50, dx w/ Stage 2, muco epidermoid carcinoma 4/07, maxiolectomy of the upper right palate 6/07, clear margins, no radiation or chemotherapy, close follow-ups.
| | | | | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Donna, insist on the biopsy. No one can tell you it's not cancer simply by looking or feeling. Play it safe.
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | | | | Joined: Jun 2007 Posts: 32 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 32 | Hello Everyone,
I had the biopsy done and the results are negative. So relieved so happy. It was cooler to hear how happy my Head and Neck surgeon was. They want me to continue with appointments and keep a close eye on me.
I've had some left ear, neck and left breast pain for the past two months. My cancer was Oropharneyl (hmm...might have got that wrong). I'm seeing my Primary care doctor because I want him to review what I found on the National Cancer sight regarding these symptons...I've also been very tired. My mammograms and ultrasounds have come back negative, so that's good news. I just want to make sure that we tidy up the last few symptons before we call it done.
Thank you all for your support, well wishes and good advice. It payed off very well.
Love and Peace everyday.
donna
Donna; Age 50, dx w/ Stage 2, muco epidermoid carcinoma 4/07, maxiolectomy of the upper right palate 6/07, clear margins, no radiation or chemotherapy, close follow-ups.
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