#73084 04-15-2008 07:51 AM | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | Hi all,
Ok i have an odd question and i'm not sure i will be able to describe this properly but i will try.
for the last three days i have been getting a very odd sensation both corners of my jaw the best way to describe it is ...... pre treatment/cancer days if i was to eat something sour i would get this kind of tingling pain in my jaw right underneath both of my ears and my mouth would water. So the last three days i started to get the same feeling all the time if i press there on both side of my mouth it feels as if my mouth is trying to water...does that make sense?
has anyone else felt anything like this? and do you think it could be my saliva glands healing?...i am of course praying thats what it is.
thanks for reading...Debz
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
| | | | | Joined: Dec 2007 Posts: 138 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2007 Posts: 138 | I've felt that same sensation occasionally. I am hoping that it is the salivary glands trying to regenerate, but my saliva is still not back to normal or even near normal. Let's keep our fingers crossed!
Nine years out. New normal with limitations, but surviving and living life to the fullest.
| | | | | Joined: Dec 2007 Posts: 138 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2007 Posts: 138 | Hi again...I just sent you a PM. Hope to hear back from you. Will look in my PM inbox!
Nine years out. New normal with limitations, but surviving and living life to the fullest.
| | | | | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | Hey i just replied hope it helps let me know.
I'm like you no saliva yet at all but fingers crossed right.
Debz
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
| | | | | Joined: Dec 2007 Posts: 138 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2007 Posts: 138 | Thanks for the PM. I sent you one back.
Nine years out. New normal with limitations, but surviving and living life to the fullest.
| | | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | auntypebbles,
I would suggest that the sensation is your salivary glands trying to produce saliva. When you smell and taste your brain activates the salivary glands to produce saliva. Sour tastes like lemon are the most powerful stimulators of saliva glands. In front of your ears and in your cheeks lie the largest salivary glands the Parotid glands.
I would suggest that this tingling sensation is a very positive indicator that your parotid glands are trying to regenerate some of their saliva producing ability.
I hope this is helpful,
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
| | | | | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | Oh Mike thank you bunches yep that was more than useful, it is getting worse so much so i am having to hold my face a lot from the pain...I'm not moaning it's great
will keep you posted on any real changes.
Tank you again. Debz
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
| | | | | Joined: May 2007 Posts: 231 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2007 Posts: 231 | I also developed severe pain in my left jaw when biting down on something. My doc said it was rare but what I have is called "first bite syndrome". I usually have to clinch my teeth because the pain is so severe. The more sour something is the more it hurts. Im not sure if it will go away or not but I am sure its some of the most intense pain I have ever felt.
Dx Mar 07 with Base Of Tongue Stage IV. IMRT 35x with 3 doses Cysplatin ran concurrent. Tx ended May 31,07. Left and right node involved. Radical neck disection 7/18/07
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | yes! U have too lately. I do feel like m saliva has improved a bit 
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
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