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#73121 04-15-2008 01:19 PM
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Did any of you have to miss treatment due to side effects? If so was it added back on the end?

Today they told Dan to skip tomorrow because of the side effects, but they still mentioned 39 treatments. It didn't ocurr to me until just now that I guess either we just lose that one or we aren't finished on the day we originally thought.


Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!

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Michelle,

Unless something else intervenes or Dan's health prevents it, they will make up the appts at the end. Bill's hospitalization delayed the finish of his total rads by three days...he made it up at the end. Remember the goal is a certain total amount of gys.


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
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I missed 3 days due to being so sick from the chemo. There was no way I could have done radiation with the dreaded mask when I was so nauseous. I had to make it up at the end.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Well I had 3 rads, then I got the PEG and the gastroenerologist saw some "stuff" and they opened up the radiation field to be safe. It was probably overkill but I am still glad we did it. This also coincided with my Erbitux adventure (anaphylactic shock). There were then 8 days without any rads (recalculation and weekends) and then it continued for the full course.

M





Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
Markus #73147 04-15-2008 05:08 PM
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I missed a day or 2 from being too ill. There were an additional 3-5 times that the machine was down. The RO's prefer it when you bulldoze through treatment but some here have been given a small respite from time to time to recover from side effects (which vary widely).


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Gary #73158 04-16-2008 02:33 AM
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I missed one day due to running a fever, and two days due to the radiation machine breaking down. The machine actuallly broke down in the middle of my treatment. All these missed days were added on at the end.


Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
TomK #73169 04-16-2008 03:32 AM
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I stayed overnight at Moffitt once in my last week of rad due to dehydration, constipation and general weakness from not eating and drinking enough and I remember being awakened by this burly nurse and was wheeled down stairs to the Radiation room to receive a Tx. I was so weak I didn't even open my eyes but they didn't let me miss one Tx. I was released at 5 pm that same day and told to eat and drink properly or I would be back.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #73196 04-16-2008 04:40 PM
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Thanks for all the input. I figured it was based on total and that we would make it up, but I forgot to ask the doctor and wanted to know. First we had to change our end date because it was going to be 35 and not 39 and now we are changing it again. I think we will forget the whole end date and just go with the counting down wink


Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!

Joined: Jul 2007
Posts: 939
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Exactly...one day at a time.

Hugs,


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill

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