#73073 04-15-2008 04:39 AM | Joined: Jan 2007 Posts: 97 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Jan 2007 Posts: 97 | Hi Guys- I had a scan recently which showed that while most of the lung mets are smaller or have disappeared, one has grown bigger. So the Erbitux is sort of working, but one tumor is resistant. I
Age 36. Four years of fighting Stage 4 Skull Base Cancer
Can't even fit it in the signature line. I've tried it all! 5 surgeries, IMRT, cyberknife, cisplatin, erbitux, AIM, taxotere, carboplatin.
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Mel- I'm sending good thoughts your way. A pamphlet actually written by someone who's living it would be an awesome thing. Some scientists telling you what the possible side effects are is not really all that helpful-especially when my husband had the supposedly "rare" ones. Will they do another scan when the next three months are up?
Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Jan 2007 Posts: 97 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jan 2007 Posts: 97 | Hi Sue-
Thanks for the good thoughts. Yes, they will do another scan at 3 months. I'm learning that I never know what to expect with the scans so I'm trying to keep an open mind. If no new ones have grown, I think I will get some time off everything. Although I'd be happy to have them snip out a lung tumor every three months forever if it would work. When the mets first showed up they said they wouldn't do the surgery because there were too many. But with just one they will try it. I'm glad to see that the plan can always change, I guess.
I'll be off email for a few days, but best of luck to you guys at your Sloan appointment. They are top-notch over there.
Mel
Age 36. Four years of fighting Stage 4 Skull Base Cancer
Can't even fit it in the signature line. I've tried it all! 5 surgeries, IMRT, cyberknife, cisplatin, erbitux, AIM, taxotere, carboplatin.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Mel,
I hope it all clears up. Hang in there.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Good Luck Mel! I'm praying very hard for you. I hope that the surgery is a very very successful. Would SO wonderful if its just one they can take out and the rest dissapeared for good. Just to let you know - you really inspire me  KATE
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Mel:
I hope that this is the last surgery you will need. Post when you are able. Good luck tomorrow!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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