#73042 04-14-2008 07:56 PM | Joined: Apr 2008 Posts: 20 Member | OP  Member
Joined: Apr 2008 Posts: 20 | Hi my name is Tony
I was diagnosed with squamous cell carcinoma of my left tonsil September 2007, I had neck dissection surgery first with 30 lymph nodes removed but only 1 with cancer. In late October I started radiotherpy with 35 treatments and went through it relatively well compared to a lot of other people but it was still no walk in the park, lost weight etc but I feel really good now.
I had a CT scan 1 week ago and the report came back with a suspicious thickening behind the tongue and next monday I go into hospital for the day and my specialist will use a scope and biospy will be taken.
I suspect the radiation did not kill the tumour or it has spread to some other part of my throat, I asked my specialist what was next if it did not kill the tumour he said most likely more radiation and probably chemo this time.
A bit nervous and worried but will post outcome of biospy next week
Regards
Tony
Diagnosed Stage 3 SCC Sept 2007, Left tonsil, Neck Dissection, 20 nodes removed, 1 cancerous, 35 Rad treatments, no peg, lost 15 kilos, x-smoker 25 years ago, social drinker, CT scan April 08, 21st April telescopic biospy, monitoring dysplasia, scan and panendscopy every 6 months.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Tony,
Welcome to the OCF. I'm sure you will be hearing from some members that have been through a similar experience. I'm sorry to hear that you might have to face additional treatment. I wish you well and I hope to hear that the biopsy came back negative.
I visited your beautiful country in Feb. 2007 and it is one of the most beautiful places in the world with some of the nicest people I have ever met.
Good luck.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Apr 2008 Posts: 20 Member | | OP Member
Joined: Apr 2008 Posts: 20 | Thanks for the kind words Jerry, I will post my results to the forum next week.
Regards
Tony
Diagnosed Stage 3 SCC Sept 2007, Left tonsil, Neck Dissection, 20 nodes removed, 1 cancerous, 35 Rad treatments, no peg, lost 15 kilos, x-smoker 25 years ago, social drinker, CT scan April 08, 21st April telescopic biospy, monitoring dysplasia, scan and panendscopy every 6 months.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Tony:
Welcome to OCF. This is a great place to ask questions and get support. I hope your test comes back negative.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Apr 2008 Posts: 20 Member | | OP Member
Joined: Apr 2008 Posts: 20 | Thanks Christine and all the best with your surgery
Diagnosed Stage 3 SCC Sept 2007, Left tonsil, Neck Dissection, 20 nodes removed, 1 cancerous, 35 Rad treatments, no peg, lost 15 kilos, x-smoker 25 years ago, social drinker, CT scan April 08, 21st April telescopic biospy, monitoring dysplasia, scan and panendscopy every 6 months.
| | | | | Joined: Apr 2008 Posts: 20 Member | | OP Member
Joined: Apr 2008 Posts: 20 | Good news
My Biopsy came back negative, scarring from redation and dysplasia. I have to see specialist again in 2 months so I am keeping my fingers crossed and enjoying life
Regards
Tony
Last edited by tonyva; 04-30-2008 01:23 PM.
Diagnosed Stage 3 SCC Sept 2007, Left tonsil, Neck Dissection, 20 nodes removed, 1 cancerous, 35 Rad treatments, no peg, lost 15 kilos, x-smoker 25 years ago, social drinker, CT scan April 08, 21st April telescopic biospy, monitoring dysplasia, scan and panendscopy every 6 months.
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Tony,
That's great news. Keep enjoying life!
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Apr 2007 Posts: 93 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2007 Posts: 93 | Tony,
Wonderful news and as you said, enjoying life .....enjoy it to the fullest! Continued good health to you.
Nancy
Caregiver to sister Connie, dx 2005, scc tongue, 4 surgeries inc. radical left side neck dissection 7/06, 35 IMRT, and 7 cisplatin 2/07, passed away 8-11-07, 51 yrs. young, fought with courage, strength and grace, found peace on her new journey.
| | | | | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Great news Tony. I remember a scare when they thought I had a mass in my lungs and it was scar tissue from radiation.............what a feeling to hear that news!
Keep on keeping on!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I had several scans that had areas that could not be excluded that resolved themselves by the next scan. Happy that you are cancer free.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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