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#73042 04-14-2008 07:56 PM
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tonyva Offline OP
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Hi my name is Tony

I was diagnosed with squamous cell carcinoma of my left tonsil September 2007, I had neck dissection surgery first with 30 lymph nodes removed but only 1 with cancer. In late October I started radiotherpy with 35 treatments and went through it relatively well compared to a lot of other people but it was still no walk in the park, lost weight etc but I feel really good now.

I had a CT scan 1 week ago and the report came back with a suspicious thickening behind the tongue and next monday I go into hospital for the day and my specialist will use a scope and biospy will be taken.

I suspect the radiation did not kill the tumour or it has spread to some other part of my throat, I asked my specialist what was next if it did not kill the tumour he said most likely more radiation and probably chemo this time.

A bit nervous and worried but will post outcome of biospy next week

Regards

Tony


Diagnosed Stage 3 SCC Sept 2007, Left tonsil, Neck Dissection, 20 nodes removed, 1 cancerous, 35 Rad treatments, no peg, lost 15 kilos, x-smoker 25 years ago, social drinker, CT scan April 08, 21st April telescopic biospy, monitoring dysplasia, scan and panendscopy every 6 months.
tonyva #73047 04-15-2008 12:31 AM
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Tony,

Welcome to the OCF. I'm sure you will be hearing from some members that have been through a similar experience. I'm sorry to hear that you might have to face additional treatment. I wish you well and I hope to hear that the biopsy came back negative.

I visited your beautiful country in Feb. 2007 and it is one of the most beautiful places in the world with some of the nicest people I have ever met.

Good luck.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
wilckdds #73101 04-15-2008 11:04 AM
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tonyva Offline OP
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Thanks for the kind words Jerry, I will post my results to the forum next week.

Regards
Tony


Diagnosed Stage 3 SCC Sept 2007, Left tonsil, Neck Dissection, 20 nodes removed, 1 cancerous, 35 Rad treatments, no peg, lost 15 kilos, x-smoker 25 years ago, social drinker, CT scan April 08, 21st April telescopic biospy, monitoring dysplasia, scan and panendscopy every 6 months.
tonyva #73102 04-15-2008 11:13 AM
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Tony:

Welcome to OCF. This is a great place to ask questions and get support. I hope your test comes back negative.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #73131 04-15-2008 03:25 PM
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tonyva Offline OP
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Thanks Christine and all the best with your surgery


Diagnosed Stage 3 SCC Sept 2007, Left tonsil, Neck Dissection, 20 nodes removed, 1 cancerous, 35 Rad treatments, no peg, lost 15 kilos, x-smoker 25 years ago, social drinker, CT scan April 08, 21st April telescopic biospy, monitoring dysplasia, scan and panendscopy every 6 months.
tonyva #73897 04-30-2008 01:22 PM
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Good news

My Biopsy came back negative, scarring from redation and dysplasia. I have to see specialist again in 2 months so I am keeping my fingers crossed and enjoying life

Regards
Tony

Last edited by tonyva; 04-30-2008 01:23 PM.

Diagnosed Stage 3 SCC Sept 2007, Left tonsil, Neck Dissection, 20 nodes removed, 1 cancerous, 35 Rad treatments, no peg, lost 15 kilos, x-smoker 25 years ago, social drinker, CT scan April 08, 21st April telescopic biospy, monitoring dysplasia, scan and panendscopy every 6 months.
tonyva #73899 04-30-2008 04:18 PM
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Tony,

That's great news. Keep enjoying life!


Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
Suess57 #73901 04-30-2008 04:46 PM
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Tony,

Wonderful news and as you said, enjoying life .....enjoy it to the fullest! Continued good health to you.

Nancy


Caregiver to sister Connie, dx 2005, scc tongue, 4 surgeries inc. radical left side neck dissection 7/06, 35 IMRT, and 7 cisplatin 2/07, passed away 8-11-07, 51 yrs. young, fought with courage, strength and grace, found peace on her new journey.
tonyva #73903 04-30-2008 04:53 PM
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Great news Tony. I remember a scare when they thought I had a mass in my lungs and it was scar tissue from radiation.............what a feeling to hear that news!

Keep on keeping on!
Minnie


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
minniea #73919 05-01-2008 02:14 AM
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I had several scans that had areas that could not be excluded that resolved themselves by the next scan. Happy that you are cancer free.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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