#72337 04-02-2008 03:29 PM | Joined: Mar 2008 Posts: 6 Member | OP  Member
Joined: Mar 2008 Posts: 6 | Hey Y'all,
How's everyone getting along? Thank you for the uplifting posts and experience and I will remember all of you in my prayer lists.
Was Dx: on 02/07/08 fro SCC rt: tonsil, Rt: neck dissection 3 lymph nodes remeoved . Today I had my floride trays fitted and one cavitiy it was filled it. ,then went rappelling and climbing at a local sate park here in NE Al.Begining the 30 rads and 3 chemo next week ,no peg tube ,will try and tuff it out. Have started consuming mass quantities of protein and exercise drinks. Report more later in my treatment plan.14 yrs ex-smoker and ex drinker.
Ricky
Last edited by mtntrekker49; 04-02-2008 03:31 PM.
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Eat regular food as long as you can - you'll have your fill of the liquid sh*t soon enough. I too tuffed it out without a PEG. It wasn't easy and I lost over 60 lbs. There are a very small group of here who have done it. Would I do it again? Probably. Things are pretty normal now...
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | Ricky - where in Alabama do you live? We're in Montgomery. Where did you have your surgery and where will treatment be?
This is a GREAT place and I contribute my husband doing as well as he is to what I am learning here.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Mar 2008 Posts: 6 Member | | OP Member
Joined: Mar 2008 Posts: 6 | Hello Michelle,
Thanks for the reply, My ENT /Oncologist was J. Magnuson at UAB , and oncologist.rad is James Payne at CCC in Boaz. Take Care.Ricky Live in DeKalb county | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Ricky,
I too didn't have a Peg and I lost about 30% of my body weight and I also would choose the same path if I had to do it over again for the first time. I am also back to almost pre Tx normal and I definitely agree with Gary....eat all your favorite fatty horribly not good for you foods starting now and quit when you will have to during the throws of Tx.
You will be glad you found this site as it will prove as valuable as anything in your arsenal. Don't hesitate to ask or complain about anything. Now go order a large meat pan pizza and eat every slice.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2007 Posts: 77 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2007 Posts: 77 | Hi Ricky,
Based on my experience I offer the following story and advice.
A week or so after starting treatment I simply could not eat "normal" food anymore. It was absolutely repulsive to me.
But I knew how many calories I needed to hold my weight - about 2700/day.
I found a simple, bland meal that I could tolerate three times a day: egg-beater omelet with cheese, two Boost Plus, and tea with honey. I used the magic mouthwash before eating.
I lost about 5 lb.
I also did light exercises every morning, as well as stretching my neck and jaw daily.
Figure out the calories, keep it simple, and good luck!
Best wishes,
Chris
SCC left tonsil, 2 lymph nodes, modified radical neck dissection, IMRT (both sides) completed 10/25/06, Erbitux and Cisplatin weekly, Ethyol daily
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