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#72285 04-01-2008 10:13 PM
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larryfb Offline OP
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hi folks,

i had radiation and chemo in '01, so i don't produce much saliva anymore. i've been on prescription fluoride toothpaste since then. always approved by BCBS, until this past week...

denied, denied, denied. sounds like Suze Orman has gone to work at BCBS.... they claim that it is excluded because it is 'preventative' dental.

i need to send letter to them, which will be reviewed by outsiders, to overrule their assertion.

i'm seeking some help putting this together... i suppose that other folks are likely run into this, so i suspect that a 'form' letter on this site would be helpful.

i'm thinking that this should be payable because
(a) i have a medical condition that requires it. this is an existing condition (what's it called)?
(b) the medication is treatment for the condition.. 'treatment' not prevention!!
(c) flouride is a minineral
(b) the toothpaste is only available by prescription

given those factors, my claim doesn't fit their exclusion,
it fits under normal prescription terms.

am i close?

cu,
larryb


'01 diagnosis.. jaw hing and base of tongue. surgery not possible. JHU used radiation and chemo to seemingly rid me of the beast. peg for about 19 months. 100 cases of 24 cans of liquid food. 9 months eating therapy. 3x esophagus stretches. non-smoker. previously a social drinker.
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Larry,

Have your dentist or ENT write the letter...they can use all the phrases that need to be included. Did you have BCBS when you were undergoing treatment...that might help establish the need. Even if you didn't, you can still show what your dx and treatments entailed. You have xerostomia, a result of radiation to your parotids..plain and simple. If you go to the main OCF site and into the link for dental issues after treatment, you should have lots of ammunition for your letter. But, I would first ask the docs to write the supporting letter.

Deb



Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
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I agree, if you need the letter, it needs to be written by your doctor, medical if it is medical that is paying for it, dental if dental insurance.

Who did you speak to at BCBS? A peon or a supervisor? Did you point out that this has been covered since 01 ansd give them dates of service for recent coverage? You need to call back and find out fron a SUPERVISOR why the change in coverage and what the letter needs to state so that is covered again. It could be being denied because they need info that the condition still exists. They do this to me all the time - like a total laryngectomy is going to go away. I only wish. I have an item that I have a letter for, but I have to call for any override eveytime to get it processed at the correct price. Can't teach them computers to do anything out of the ordinary. Good luck and keep fighting it.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Why bother with the tooth paste? Why not ask for prescription foam instead? I do pay for my own fluoride foam but I have not attempted to submit a claim. They might cover that.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Gary #72378 04-03-2008 01:42 PM
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Get your RO to call and explain that this is a medical necessity. That's how my RO got them to pay for Carnation VHC which I is what keeps me alive and kicking for now.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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larryfb,
First, I would like to say that I believe you should be covered for fluoride supplementation due to your recent history. Prescrition fluoride toothpaste is a good product. I don't utilize it very often in my patients with reduced salivary flow because in my experience topical fluoride applied via custom fluoride trays are much more effective in protecting the teeth from deterioration and patients prefer them and are much more inclined to follow my instructions.
However in the research I have read there is no significant difference in the benefits of prescription fluoride toothpaste compared with fluoride rinses and/or gels in protecting the teeth if used properly. In my practice, in Canada, I have had few occasions where a patient's insurance has not, at least partially, covered additional fluoride use if presrcibed by a dentist or doctor. In recent memory I have had to write one letter for a patient to their insurer and it resulted in coverage for the patient.
If the letter you send to your insurer is unproductive ask your dentist and/or doctor about alternative fluoride products as you may have coverage for a different method of application.
Please contact me if I can offer any further assistance or answer any questions.
Cheers,
Mike


Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
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Posts: 136
larryfb Offline OP
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thanks for everyone's input.
the letter below follows the insurance company's guidelines.

we'll see how it goes.

cu,
larryb


====================================
Dear Customer Care Representative,

I have been a BCBS participant for more than 10 years. This letter is in response to the BCBS denial of payments for 1.1% Sodium Fluoride dental cream. BCBS has paid for this medication for 7 years, so this denial was a surprise to me and seems to be due to a misunderstanding. My medical condition has not changed and will persist. Herein I review the circumstances so that the error can be corrected.

In 2001, I was treated with radiation and chemotherapy for oral cancer. Radiation treatment for the illness resulted in me having Xerostomia. The attached material explains Xerostomia and states 'To protect against tooth decay during and after treatments, patients with xerostomia should apply fluoride to the teeth daily to protect them.' I have followed that protocol since 2001 and continue to do so. Until now, BCBS has paid the co-pay. The facts:
a) I have a medical condition, Xerostomia.
b) My physician, Dr. S a licensed dentist in the US, prescribed fluoride treatment.
c) The drug is FDA regulated and only available by prescription.
d) The treatment is normal\standard\recommended for the condition that I have.
e) I purchased a generic equivalent.
f) I purchased the medication at a retail pharmacy.
This medication is for treatment of an Existing Medical Condition. Therefore the appropriate section of 2008 BCBS Service Benefit Plan book is Pages 85-87, where the requirements for payment of Covered Medications are presented. The facts of my claim conform to those requirements for BCBS payment of 'Drugs, vitamins and minerals, and nutritional supplements that by Federal law of the United States require a prescription for their purchase.' On the other hand, the BCBS handbook does not list exclusion of payment for treatment of Xerostomia, or any other existing medical condition.

Thus BCBS should reimburse me for my prescription expenses on 4/6/08 (75% x $20.99 = $15.74) and provide similar payments while I am a BCBS participant. Thank you for your efforts.

Sincerely,


Larry Bliven

I concur with the medical facts of this letter. _______________________Dr. S.
Attachments: Oral Cancer Foundation article on Xerostomia.
Walgreens Pharmacy Receipt


'01 diagnosis.. jaw hing and base of tongue. surgery not possible. JHU used radiation and chemo to seemingly rid me of the beast. peg for about 19 months. 100 cases of 24 cans of liquid food. 9 months eating therapy. 3x esophagus stretches. non-smoker. previously a social drinker.
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Good luck. Mine has never been pad for, either. You can appeal it as high as you feel like going. I really hate insurance companies. I know they have to control costs but what makes them think they can over ride a doctor?


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Joined: Sep 2006
Posts: 8,311
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Good luck, let me know how it turns out.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Apr 2003
Posts: 136
larryfb Offline OP
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The insurance company responded to my letter with a demand that i get a letter from my doctor and that i release the medical records for the past year. paperwork to be completed within 60 days.

i thought this was a bit much and decided to sit on it.

then someone with a functioning brain at the insurance co read the material that i submitted - they sent me an approval letter.

in the grand scheme of things, this was a very minor victory. however, i feel better because i went thru the process and things worked out.

the material from the OCF certainly strengthen\made my case for me. thanks for being there.

cu,
larryb


'01 diagnosis.. jaw hing and base of tongue. surgery not possible. JHU used radiation and chemo to seemingly rid me of the beast. peg for about 19 months. 100 cases of 24 cans of liquid food. 9 months eating therapy. 3x esophagus stretches. non-smoker. previously a social drinker.

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