| Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Dec 2006 Posts: 147 | BTW does anyone know how long you have to be finished with Erbitux before they do any scans? Can they tell immediately if it is working or not? Jim has 6 more radiation treatments and 2 more Erbitux....I just am getting very "antsy" to see how long it will take before we know if we have tamed the beast.
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009 Lost the battle November 23, 2010
| | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | Paula, A hint to save your back and energy. You could use rolling carts to bring those bottles and other groceries from the car. I have 2 I got from Big Lots for $15 each. They are about $20 -25 at the office supply stores where they are called rolling file boxes. They are hard plastic and fold up to a briefcase shape. I also use the new "green" shopping bags and load the carts and sling my purse and bags with lighter stuff over the handle and can pull 1 cart with each hand. This is even easier than when I used to use the grandkids' wagon to bring groceries in. If I am tired or have something that needs to be done I put away what needs to be refrigerated, take a break and the rest is waiting in the carts and not all over the kitchen. Sometimes I leave non-perishables in the car and cart them in later. Malka
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
| | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | Paula- My husband had a PET four days after his eight Erbitux treatment. We were also told at a follow up that the stuff keeps working for awhile after treatment is finished. The oncologist told us that he likes to get at least eight in before the do another scan. He will be stopping Neil's treatment because it did not work and hopefully Sloan can so something for him. I think he had this &*#$ disease for too long before diagnosis. He had three different doctors tell him it was a virus. A simple biopsy would have changed everything. Sue
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | OMG, she would be in heaven. Most stores and malls know her by first name !! True story, she and her mom would go shopping and come home and while my wife (her daddy's little girl) would get her father to join her in the back yard, her mom would rush and put all the new clothes into their closets. Then when the poor unsuspecting father would ask if that dress was new, they would exclaim "oh, this thing, I've had it for years. Don't you ever notice what I wear!" The poor man died not knowing what he was up against. My wife says that "shop to you drop" saying is for wimps.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Dec 2006 Posts: 147 | Well the rash is horrible - Jim has a very fair complexion, so the blistery pimples look very uncomfortable - he doesn't complain, just notes that he is miserable...for him that is complaining. I do have a question abou the Aquaphor Healing Ointment...is this a prescription or OTC....We have a prescription of Metronidazole...Dr. Barker also suggested using Benadryl spray as well....before I go spend $100 on this, I would love everyone's advice on what worked for their loved ones. I'm not tight with $, but Jim certainly is....I'm the one that went out and spent $48.00 on bandaids at Thanksgiving and the clerk made the comment "wow - looks like the turkey won at your house and suggested that I remove the knives from my home"...I just laughed - so, before I embark on another venture and buy a bunch of OTC creams, just need your opinions...thanks so much everyone! Paula
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009 Lost the battle November 23, 2010
| | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Hi Paula, Aquaphor is sold OTC, here in PA it sells for approximately $15.00 for the larger container--well worth it! She also used the minicyclene(not sure of that spelling, it is a prescription)they(the MO office) merit the combo together for healing. I have also used the aguaphor for me and the kids, it's terrific on chapped lips, dry skin, a wonder drug in my opinion.
Last edited by Donnarose; 04-08-2008 02:40 AM.
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | Joined: Jan 2006 Posts: 101 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2006 Posts: 101 | Erik was told to use Head and Shoulders shampoo to help with the pain of the rash, it has a numbing agent in it. Jennie
Caregiver to Erik -1st DX 12/22/2005 SCC of Tongue, T3N1M0, hemi-glossectomy,60 nodes removed, carboplatnin,Erbitux, 35Rads. Reoccurrence T1N0M0 4/14/08-partial glossectomy-16 weeks Erbitux and Taxol- 3rd reoccurrence 5/18/12- partial glossectomy
| | | | Joined: Jan 2006 Posts: 101 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2006 Posts: 101 | Erik was told to use Head and Shoulders shampoo to help with the pain of the rash, it has a numbing agent in it. Jennie
Caregiver to Erik -1st DX 12/22/2005 SCC of Tongue, T3N1M0, hemi-glossectomy,60 nodes removed, carboplatnin,Erbitux, 35Rads. Reoccurrence T1N0M0 4/14/08-partial glossectomy-16 weeks Erbitux and Taxol- 3rd reoccurrence 5/18/12- partial glossectomy
| | | | Joined: Dec 2006 Posts: 147 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Dec 2006 Posts: 147 | Hi everyone, I just got home with Aquaphor, more benadryl and tylenol...Jim's rash is very bad and today he looks very swollen and he feels like he has the flu...he received his 3rd Erbitux treatment on Monday so today is Wednesday and he seems to always feels worst on this day....thanks for all of the advice - I hope that Aquaphor will give him some relief...it feels very much like the Mary Kay Extra Emollient night cream that I use on my face at night - Thanks again everyone - We'll try the Head & Shoulders to see how it goes, too. Paula
Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009 Lost the battle November 23, 2010
| | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2008 Posts: 706 | Hi Paula- My husband had great relief with the Head & Shoulders. He felt fluish after the first treatment but not with any of the others-he just felt tired. He has not had a treatment for 2 weeks but still has the rash and tiredness. The dryness of the skin has eased up a bit. Sue
Last edited by suemarie; 04-09-2008 02:48 PM.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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