#72063 03-28-2008 12:21 PM | Joined: Oct 2007 Posts: 4 Member | OP Member Joined: Oct 2007 Posts: 4 | My mother completed 30 radiation treatment for oral cancer about six weeks ago. She is off the pain medication and feeling much better which is fantastic however, her main concern is her lack of saliva and secondly, when she tries to eat, nothing tastes the same.
Her doctors have advised her that in time her saliva will return although not to the same level as before the cancer and her taste buds will return.
I know everyones recovery is different but can anyone give me some input on when their saliva and taste buds starting to function again.
Thanks | | | | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 67 | You're right it is very individual. My salivary function never returned, and it took about 4 months for 90% of my taste to return. It has stayed there with sweets being the one that didn't return completely. It is all a function of the glands exposure, and for how long. IMRT people have a slightly better result than most since their radiation in many cases can be mapped around the parotid glands, at least partially depending on where the primary lesion is located.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Sep 2007 Posts: 61 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2007 Posts: 61 | As Brian stated it is very individual. Mary is about 9 weeks out of radiation and taste is beginning to return-for her sweet things taste the best, which is the opposite of Brian. She is still very dry, but the docs told her "one month recovery for every week of radiation"-so she will pretty much know where she stands about 7 months out (5 to go). Her trusty bottle of water is attached to her side. Tell your mom to hang in there and I wish her all the best.
Liz
CG to friend Mary. SCC Stage IV-A of rt. tonsil, mets. to lymph node on rt. DX 06/07,tonsillectomy 08/07, Chemo Cisplatin, Taxotere and 5FU X3 cycles; RAD completed 1/20/08 RND scheduled for 3/08. 54yr.old, NS, social drinker.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | It took 16 months of baby step improvements for my taste and saliva to return to something I can live with if they don't improve further so just advise patients. I enjoy everything now and my saliva is almost back to pre Tx.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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