#7178 03-21-2006 05:28 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Lily,
I am truly sorry for all you and your family is experiencing right now. I am praying for comfort and peace for all of you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#7179 03-21-2006 06:16 PM | Joined: Oct 2005 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2005 Posts: 126 | Lily,
I am very sorry to read about Scott's condition. I pray that God will ease Scott's pain and yours.
CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations
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#7180 04-15-2006 07:20 PM | Joined: Sep 2005 Posts: 36 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Sep 2005 Posts: 36 | Thank you for all your prayers and support. We are making the most of our time together.
Scott has written a lot of things that he would like me to follow through in the future. One of those requests is that I remain active in this forum to be able to help others and to find a way to raise awareness.
He is a HUGE NASCAR fan and he hopes that it will bring light into this foundation for the much needed help. Its unfortunate that Bobby Hamilton has to go through this but we are wishing him the best. We know what he will go through.
One of the things he was able to do this last February was to be able to visit the garage area at the California Speedway. He enjoyed being there very much but it was very draining on him and we were not able to stay very long.
I have read all the messages posted on this thread to him and he thanks each and every one of you.
Thank you
wife to 36 yr old husband diagnosed with SCC on 7/6/05, tongue dissection and radical neck dissection on 7/15/05, 2nd biopsy on 9/15/05 and found carcinoma in-situ. Starting radiation and chemo on Oct 05
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#7181 04-16-2006 05:36 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Dere Leze and Scott, Hug each other and your kids alot. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#7182 04-16-2006 11:15 PM | Joined: Mar 2006 Posts: 26 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2006 Posts: 26 | Please know that you all are in my thoughts and prayers. I really hope that all of you can find peace.
Blessings,
Molly | | |
#7183 04-16-2006 11:43 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Dear Lily,
I just wanted to say that I admire Scott's unselfish courage and how bravely he is dealing with this.
I don't know what I would do if I was in his circumstances.
I just pray that God gives you both comfort and peace through all of this.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#7184 04-17-2006 04:59 AM | Joined: Mar 2006 Posts: 60 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2006 Posts: 60 | Dear Lily,
Yourself and Scott are truly remarkable with your courge. I am so sorry to hear this news. I will pray for you and your girls and for Scott. God bless you and if you need anthing, please ask.
Delia
Delia- Caregiver and fiancee to Charlie ,age 30,(SCC of Larnyx-Stage IV) chemotherapy and radiation- no surgery finished tx:4/7/06 SURVIVIOR!
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#7185 04-19-2006 05:26 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Folks, I hope it is not out of my place to tell you of the sad news of Scott's passing 4-18-06. Lily sent me this sad news tonight. Needless to say, thoughts and prayers to lily and her family....
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#7186 04-20-2006 09:49 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Thank you Mark for relaying the news.
It is always sad when we lose a friend from this forum.
Lily may your God walk with you at this time and comfort you.
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#7187 04-20-2006 10:27 AM | Joined: Jan 2006 Posts: 107 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2006 Posts: 107 | My dearest lily, my deepest sympathy in this time of profound sadness. May pleasant memories of scott wash over you now and forever.
lenny | | |
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