#70964     03-03-2008 11:57 PM      |       Joined:  Apr 2007  Posts: 64    Supporting Member (50+ posts)   |      OP      Supporting Member (50+ posts)    Joined:  Apr 2007  Posts: 64  |    I am try to find some information about manual lymph drainage, post salivary gland cancer. For some reason since my original surgery back in 06, I keep getting inlarged lymph nodes around the orignal incision site. I had one big one removed last fall and it showed no further cancer (Yeah!) however they keep swelling. I had the lymph drainage last week and of course now I am afraid I may be spreading the cancer. Has anyone had this therapy does it help or should it be avoided?  Signed, always a little scared!!!        
Adele,  mucoepidermoid carcinoma of the submandibular gland, 05/06,  left neck dissection, gland and tumor removed, intermediate grade, margins negative, 9 lymph nodes negative, no rad, no chemo,  11/07 surgical biopsy of lymph node left neck, no cancer!
  |      |       |               |    |       Joined:  Feb 2005  Posts: 2,019    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Feb 2005  Posts: 2,019  |    If you are talking about lymphatic drainage massage therapy, I had an ENT at a top hospital recommend this to me as one way to help because I had (still have?) lymphedema around my lower tongue which may be part of what is impreding my swallowing.
  With all the massage therapists around where I live (there is a massage shcool in my city so there are scads of them), I was only able to find one trained in lymphatic drainage. I saw her a couple of times and I didn;t notice any appreciable difference in my tongue or swallowing.  It is a very gentle massage tehcnique, though, and she did teach me how to do the basics of it on myself, which I did. 
  I don't think it could hurt you.
  Nelie        
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia.  "When you're going through hell, keep going"
  |      |       |               |    |       Joined:  May 2002  Posts: 2,152    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  May 2002  Posts: 2,152  |    I went to a Physical Therapist for this and it did help quite a bit. This has the added advantage of being paid for by insurance which I doubt that a massage is. The PT also did intra and extra oral massage to improve saliva and avoid trismus. Also stretched neck/arm muscles that were screwed up from neck dissection. I'd talk to my doctor about getting a script and a recommendation to PT who does this. You should also have cleared massage with him before having it.
  Take care, Eileen              
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad  Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer  June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I     
  |      |       |               |    |       Joined:  Jan 2008  Posts: 179    Senior Member (100+ posts)   |           Senior Member (100+ posts)    Joined:  Jan 2008  Posts: 179  |    I had it done after a surgery where my lymphatic system was impaired (not Cancer related), and it worked wonders.  I would check and see if you cannot get it covered through your insurance.  The benefits were fantastic, but it got to be very expensive as I paid out of pocket each time.  There were not too many skilled in it in my area either.  I wish you luck with it!           
Dad: Age 65 Heavy smoker/drinker.  Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
  JUNE 30, 2008 Officially CANCER FREE!!!    |      |       |               |    |       Joined:  Apr 2007  Posts: 27    Contributing Member (25+ posts)   |           Contributing Member (25+ posts)    Joined:  Apr 2007  Posts: 27  |    I found a person trained in manual lymph drainage in my area from the Academy of Lymphatic Studies website.    http://www.acols.com/ I selected "find a therapist" then entered my zip code and received the name of a trained therapist by return email.   I've just begun therapy and I'm pleased so far.  The only down side is that the therapist is a massage therapist not a physical therapist so my insurance doesn't pay. marilyn         
dx: Stage 3 T2N2aM0 Left tonsil, base of tongue, 1 left node.  HPV positive. tx: Tonsilectomy (left) then Cisplatin x2, Erbitux x7, IMRT x35 Phase 3 clinical trial. Completed 6/28/07
  |      |       |               |    |       Joined:  Apr 2007  Posts: 64    Supporting Member (50+ posts)   |      OP      Supporting Member (50+ posts)    Joined:  Apr 2007  Posts: 64  |    Thank you for your replies. I have been reading about this terapy and I think I will give it a try. Also, massage will hopefully breakdown some of the scar tissue in my neck. Went for my check up yesterday with Oncolgist and seems I am okay and FREE for another 4 months!!! Yippee. Wishing you all well.        
Adele,  mucoepidermoid carcinoma of the submandibular gland, 05/06,  left neck dissection, gland and tumor removed, intermediate grade, margins negative, 9 lymph nodes negative, no rad, no chemo,  11/07 surgical biopsy of lymph node left neck, no cancer!
  |      |       |               |    |       Joined:  Jun 2007  Posts: 5,260    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Jun 2007  Posts: 5,260  |     Dr JohDavidPollock is upset with the James Cancer Center at Ohio State for not admittt9ng to him that I have Cancer below my right ear and needs surgery.I wonder why it is when you are one of the big guns,, it getsharder to admitt a misatke.I shouod havd beeen finishin this treatment instead fo jts starting thme.Time to shake the BUSH maybe.        
     Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan.  I averaged  about 2 to 3 surgeries a week there.  w  Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube .  Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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