#7114 03-12-2006 01:49 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Barb,
I read it and will be attending. We'll talk later.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#7115 03-17-2006 12:58 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi everyone,
Just wanted to move this thread up to the top.
Besides Bobb131 and me, is there anyone else planning on attending the walk?
I know it's a great distance for most of you. It sounds like a great idea, raising money for the OCF, free oral screenings in a high risk area and a chance to meet the wondeful members of this group.
Please check the links in Barb's posting at the top of the thread.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#7116 03-17-2006 02:33 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Jerry, I would LOVE to attend but unfortunately cannot this time. I am happy to sponsor you if you would like..Thanks, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#7117 03-17-2006 05:12 AM | Joined: Jan 2006 Posts: 7 Member | | Member
Joined: Jan 2006 Posts: 7 | I wish it wasn't starting in Harlem. If it was starting in Mid-town, more people might show up | | |
#7118 03-17-2006 07:05 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | What is at 137th and 5th avenue and where is the nearest subway stop? Where are you walking to? Anybody get the route yet?
Right now my walking legs are working so I'm not willing to commit to anything.
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#7119 03-17-2006 07:48 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Eileen,
I will get the information for you. I will contact the people running the event by email and let you know in plenty of time. It's been a long time since I lived in NY and I never really travelled to Harlem by train
I would offer to drive you up there, but I am going to be at my daughter's house in Springfield, NJ on Friday and I am planning on sleeping there and then drive to the city on Sat.
Hope you can make it.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#7120 03-17-2006 09:02 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Carol,
That's nice of you to offer to sponsor me. I am collecting money from relatives and friends and will be bringing it to the walk.
If you would like to send a check, made out to the Oral Cancer Foundation, that would be great.
Dr. Jerold B. Wilck
KWH Dental Assoc. P.C.
680 Middletown Blvd.
Suite 201
Langhorne, PA 19047-1817
Glenn,
I too was a little hesitant about Harlem, but my concerns lessened when I thought about it. Late morning and mid-day shouldn't be a problem. I know the area was picked due to the fact that the organizers felt that this area of the city was in need of education more so than others. In addition, there will be free oral cancer screenings being done along the route.
Hope you can see your way clear to come and join the walk.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#7121 03-17-2006 10:14 AM | Joined: Nov 2005 Posts: 105 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2005 Posts: 105 | Jerry, If you don't mind, I'll sponsor you as well. Is there a specific amount? Or is it just a gnereal donation. I know I have some other family members who may also want to sponsor as well. John
SCC base of tongue. Diagnosed as stage IV, Sept. '04. Partial glossectomy, Radical neck dissection left side, 37 Radiation sessions, Chemo x 7 weeks. Finished treatments January '05. Cancer surivor!
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#7122 03-17-2006 10:17 AM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 64 | You have to understand that when we do screening events (which are included on the route of this walk chosen by NYU), we on purpose choose to do them in undrprivledged areas of a city. The last screening we did here in CA was in south central LA, not far from the location of those really bad riots of ten years ago. I never met a more thankful, polite, and helpful group of people than those who that came to the screening. The area was 60% black and 40% Hispanic. Racial sterotypes are not going to get in the way of what we need to accomplish.
It doesn't do us alot of good to have a screeening in Westwood, or Santa Monica, as all the residents there have $, see a dentist regularly, etc. As to Harlem, Bill Clinton has his office there, and any phobias that you have about the area, especially in the day time are misplaced. There is a huge medical center at that address where the walk starts. There will be maps of the area to be walked at the registration desk, and I will ask the school to send me a version that I can put up on the web site.
The issue of disparities in health care and health information in the US are significant. If people are not willing to reach out to others in less priveldged areas, it is indeed a sad world.
Does anyone think that blacks get and die from oral cancer twice as often as whites because there is something genetic in blacks that causes that? Hardly. It has to do with socio-economic issues that are for the most part not in the control of those affected. If you grew up in south central LA, I guarantee you that you would have had a lesser education, lesser availability of healthcare, less of a feeling that you would have the opportunity to breakout of the poverty that might be keeping your family there, and fewer local role models that would perhaps keep you from smoking and engaging in other lifestyle habilts that would compromise your health. That only scratches the surface of some of the obsticles that you would grow up with, that those growing up in a neighborhood 10 miles away in LA wouldn't face. As a last soapbox perspective, in the neighborhood where we screened, a grade school child shares their textbook with two other children. In the city next door, one zip code away, this isn't the case, everyone has their own books. What does this do to a young child's learning abilities, and chances? There are disparities that take an extraordinary person to overcome. Out of this particular neighborhood however, one comes to mind who is giving back. Magic Johnson. We have to do what we can with what we have to change things. If those of us that have fought for life cannot appreciate a differnet kind of unfair fight, then we are surely myopic. If you all haven't seen the movie Crash, I highly recommend it. The issue of stereotypes and how they influence us is cleary shown for the problem that they are.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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