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Sophie H. #70921 03-03-2008 06:44 AM
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Same here,

When Bill was hospitalized with neutropenia and a fever, they put him on a morphine pump in lieu of pain meds thru his peg. He looked and acted very sick...I was scared. He was hallucinating, couldn't talk well, couldn't stay awake, etc. Two days home and he was just so much better...darn near normal even though he had not finished treatments. I would be questioning the docs about this...very hard to do, I know.

Hang in there Jim and family....sending hope and strength your way.

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
debandbill #70926 03-03-2008 08:13 AM
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I echo what others have said about impact of pain medication. I am very sensitive to pain meds, at a lot of levels. When they gave me Demerol for my colonoscopy a couple of years ago, it was like a sledgehammer. My breathing gets real slow, and I am in "La-la Land" for a long time. My wife still laughs about taking me through Wendy's after the procedure, because I was starving. She said "Do you know what you want?" I replied "Yes", and sat there. She waited a respectful period of time, then asked "Do you want to tell me?" ;-)

Same thing with my neck dissection, except worse. They had me on morphine that night, and I was apparently hallucinating and very restless, and also had the depressed breathing. They got me off the morphine by the next morning (surgery started at 4:00 PM).

I hope it is just a reaction to pain meds. Prayers coming your way.


Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
MegNewsome #70934 03-03-2008 08:53 AM
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Thank you for the updates, I am keeping Jim in my prayers


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #70943 03-03-2008 12:45 PM
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Posts: 2,019
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Jim is in my prayers. He's a fighter and I hope he'll pull through this.

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
Sophie H. #70947 03-03-2008 02:39 PM
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Posts: 8,311
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How long has he gone without calories? I assume his docs or someone is keeping up with that? The nasal tube is definitely something to consider. I had one for about 2 weeks after my Tx had ended and it really helped me get over the final hump and it didn't bother me hardly at all.

Come on Jim fight some more, you're soooo close.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #70949 03-03-2008 02:46 PM
Joined: Feb 2008
Posts: 38
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It's been quite some time from what my nephew, Jim's son, has told me about him eating anything. I got a call from Jim's former wife, and she told me the hospital put him in their extended care facility. I guess he's real confused about some things, and doesn't really know where he is. They said it was from the medications. I was told he will be in there for a few days, because his doctors are all in that area. My sister and I are going down to Wheeling tomorrow afternoon and see what's going on. We're all really worried about him, and we're praying, too. I'll let you all know tomorrow when my sister and I get back. You all are so great. And we appreciate ALL the Encouragement. You are all such blessings! Carol

Last edited by Carol Cunningham; 03-03-2008 02:48 PM.
MegNewsome #70950 03-03-2008 03:04 PM
Joined: Jan 2004
Posts: 104
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Posts: 104
Hi Meg,

My thoughts and prayers are with you and your grandpa.
Sending you a big hug to help you not be scared, and positive thoughts that he has successfully finished radiation, chemotherapy, and implants and will be cancer free and feeling well soon.

My best to you and your grandpa


Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"

Joined: Jan 2008
Posts: 179
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Jim, fight and fight hard! We are all thinking about him and the entire family. Thoughts and prayers go out to you all!!! smile


Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08

JUNE 30, 2008 Officially CANCER FREE!!!
MegNewsome #70952 03-03-2008 03:20 PM
Joined: Jan 2008
Posts: 179
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What a wonderful grandaughter you are. We all love your Grampa Jim. He is in our thoughts and prayers as well as your entire family. smile


Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08

JUNE 30, 2008 Officially CANCER FREE!!!
Joined: Nov 2007
Posts: 212
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Hang in there Jim! We miss you and can't wait to have you back.


Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
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