| | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Same here,
When Bill was hospitalized with neutropenia and a fever, they put him on a morphine pump in lieu of pain meds thru his peg. He looked and acted very sick...I was scared. He was hallucinating, couldn't talk well, couldn't stay awake, etc. Two days home and he was just so much better...darn near normal even though he had not finished treatments. I would be questioning the docs about this...very hard to do, I know.
Hang in there Jim and family....sending hope and strength your way.
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | I echo what others have said about impact of pain medication. I am very sensitive to pain meds, at a lot of levels. When they gave me Demerol for my colonoscopy a couple of years ago, it was like a sledgehammer. My breathing gets real slow, and I am in "La-la Land" for a long time. My wife still laughs about taking me through Wendy's after the procedure, because I was starving. She said "Do you know what you want?" I replied "Yes", and sat there. She waited a respectful period of time, then asked "Do you want to tell me?" ;-)
Same thing with my neck dissection, except worse. They had me on morphine that night, and I was apparently hallucinating and very restless, and also had the depressed breathing. They got me off the morphine by the next morning (surgery started at 4:00 PM).
I hope it is just a reaction to pain meds. Prayers coming your way.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thank you for the updates, I am keeping Jim in my prayers
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Jim is in my prayers. He's a fighter and I hope he'll pull through this.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | How long has he gone without calories? I assume his docs or someone is keeping up with that? The nasal tube is definitely something to consider. I had one for about 2 weeks after my Tx had ended and it really helped me get over the final hump and it didn't bother me hardly at all.
Come on Jim fight some more, you're soooo close.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2008 Posts: 38 | It's been quite some time from what my nephew, Jim's son, has told me about him eating anything. I got a call from Jim's former wife, and she told me the hospital put him in their extended care facility. I guess he's real confused about some things, and doesn't really know where he is. They said it was from the medications. I was told he will be in there for a few days, because his doctors are all in that area. My sister and I are going down to Wheeling tomorrow afternoon and see what's going on. We're all really worried about him, and we're praying, too. I'll let you all know tomorrow when my sister and I get back. You all are so great. And we appreciate ALL the Encouragement. You are all such blessings! Carol
Last edited by Carol Cunningham; 03-03-2008 02:48 PM.
| | | | | Joined: Jan 2004 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2004 Posts: 104 | Hi Meg,
My thoughts and prayers are with you and your grandpa.
Sending you a big hug to help you not be scared, and positive thoughts that he has successfully finished radiation, chemotherapy, and implants and will be cancer free and feeling well soon.
My best to you and your grandpa
Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Jim, fight and fight hard! We are all thinking about him and the entire family. Thoughts and prayers go out to you all!!!
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | What a wonderful grandaughter you are. We all love your Grampa Jim. He is in our thoughts and prayers as well as your entire family.
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Hang in there Jim! We miss you and can't wait to have you back.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | |
| Forums23 Topics18,241 Posts197,124 Members13,309 | | Most Online1,788
Jan 23rd, 2025 | | |
|
