| Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Thanks for the update. It's great he has such good care and support from his family through this. We miss him here.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | Joined: Jan 2004 Posts: 104 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2004 Posts: 104 | Thanks for the update Carol, I really appreciate knowing how Jim did with the implants. I'm glad it's over now, and he can rest and get better at his daughters.
Please send him my best, and God bless you too Carol!
Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes. DX10/23/03 IMRT 12/29/03.30 rad,3 boost. Brachytherapy 3/8-3/11/04. Recurrence Nov07 Stage IV. 4 Surgeries No rads, no chemo I have oral lichens planus, thrush,leukoplakia 2/20/08 6/2/08 biopsies "inflammation"
| | | | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Feb 2008 Posts: 38 | Hi, everyone. Well, I talked to Jim's son this afternoon. He said they got a call from the hospital last night. Jim fell out of bed. They said he's having a bad reaction to the morphine and adavan. They have him strapped down, and they couldn't put in the feeding tube, because of the hernia surgery he had in the past. Jim's kids and grandkids are getting his room ready for him at his daughter's house. His son said if everything goes okay, Jim should be home from the hospital Tuesday. He's having the surgery tonight, to remove the tubes and the radiation seeds. This just feels like a rollercoaster ride. Thanks for your prayers and support. Love, Carol | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2008 Posts: 179 | Oh Carol, thanks for the update. I hope he is okay after the fall. Poor guy, he has been through enough! I wonder what will be the next step if they cannot get the feeding tube in? Please continue to keep us all posted, we appreciate it so much. As always, sending thoughts to you and the rest of the family! 
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!! | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Nov 2007 Posts: 681 | Carol, It is so good that you have been keeping up with Jim. Thanks for being there. We all have been so concerned about his bravado getting him in trouble. I add to my prayers that he not have any additional suffering from his fall.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013. Support OCF
| | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | Carol -- Thanks for the updates. Jim is in my prayers constantly. Having met him in person at the James, he is a great guy and we all want this to go quickly and well for him. Thanks again. Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | | | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Feb 2008 Posts: 38 | Hi, everyone. Well, surgery went good, but Jim had another bad night. The nurse said they've had an aide in the room with him because he tried to get out of bed, again, last night. The nurse said it was if he was reaching out for something, and I said, "Or someone". They gave him Halodol and it seemed to calm him down a bit. He still isn't eating. I guess his daughter said something about having the feeding tube put down his throat. But if it's irritated that bad, I would think that would really bother him, considering he already has alot of irritation in there,now. He did eat a bite of an ice chip. I told the nurse this doesn't sound too good and she agreed. I'll keep you all updated and let you know when he's at his daughter's house. God bless you all. Carol | | | | Joined: Jan 2008 Posts: 3 Member | Member Joined: Jan 2008 Posts: 3 | well just an update on jim my grandpa .. he is not doing good at all he is really really bad were not sure if he is gonna make it or not.... so keep him in your thoughts and prayers | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | "OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 |
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | Joined: Jul 2007 Posts: 211 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jul 2007 Posts: 211 | Hello, Jim's family,
Some of Jim's behavior sounds like a reaction to pain meds. My husband had terrible pain and they increased his fentanyl too quickly and too high for him and he had hallucinations and tried to wander around. He was hospitalized for 2 days and actually "escaped" once for a couple of hours. He looked like he was reaching out to something (really scary for me driving down the highway as this went on for several weeks) as he kept thinking he was seeing things. He seemed to be in a twilight sleep a good part of the time. From Jim's postings, he was not taking that much pain medication until pretty recently so perhaps that's part of the problem> I really was terrified during this time but knew if was likely due to morphine and fentanyl. He was so much better as soon as it was reduced. My thoughts are with you.
Sophie T.
CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+ induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
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