| | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Well, as we learned from my Dad, just cuz it is there, doesn't necessarily mean you can get it down. Hang in there! 
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Jim,
White tongue may be thrush. Have they checked you for it? Are you on meds for it? I can't believe they would overlook something like this, but thought I would ask.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | So much of this cancer's battle is mental and that's one reason why this site is so valuable as it can eliminate the fear of the unknown. I wasn't lucky enough to find this site until 2 weeks after my Tx ended and I guess that's one reason why I want to post because I don't want anyone to have to go thru this Tx mentally unaware of what can/will happen. There were soooo many times that I thought the cancer or the Tx were getting the best of me only to later find out I probably had an easier time than most. I know if someone had told me during Tx that I was having normal side effects, it would have made a big difference.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Eileen, yes they have checked it and it's part of the cancer. At least the tumor on the center of my tongue has shrunk some. I'll double check tomorrow and make sure they did check it for thrush.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | David, I sure agree with you on the value of this site and all of the great people that can give advice. I would be lost without it. So far I have placed the brochures Brian sent me in 3 different offices. People are interested because this is a unique cancer and too easy to have and ignore by not thinking of a sore in the mouth as cancer.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2008 Posts: 38 | Hi everyone. Just wanted to let you know Jim had his surgery yesterday. Everything went as good as could be expected. He has a morphine pump to keep him sedated. I talked to his nurse this morning, and she said he didn't sleep well last night because of the pain. They gave him Adavan, and it knocked him out. She also said they have to suction out his mouth because it's difficult for him to swallow because of the tubes in him mouth. She said he's been really nice about everything and she also said he should start to feel a little better tomorrow. So, I'm assuming that's when they'll take the radiation seeds out of his tongue. Then he's going to stay at his daughter's. We are so thankful for that, because she's a registered nurse, and this way, our family will be able to help her as much as we all can. I'll keep you updated. God bless you all, Carol | | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Thanks for the update. My thoughts were with Jim and will continue to be as he recovers. Miss his witty comments and insights. Glad he has such a good support system with his family and hope to see him on the posts soon.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Carol, Thank you for posting the update. I know many of us were wondering how he was doing. Hoping he is feeling our good thoughts for him!
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
| | | | | Joined: Jul 2007 Posts: 211 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2007 Posts: 211 | Carol,
Thanks so much for the update. I really miss Jim's posts- he's always so upbeat and so encouraging and supportive of others.
Sophie T.
CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+
induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
| | | | | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Please tell Jim how much we care about him! Praying that he'll be better soon...
Love, Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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