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scotslass #70044 02-18-2008 04:56 PM
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EzJim Offline OP
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We are close in the treatment range. I had my 16th today . I hope your friend starts feeling good one day soon and I hope this old guy does too. LOL I believe we men are stubborn for a reason, to keep the ladies from running over us, Just kidding.Have a good day tomorrow and tell your friend to be glad she has you to take care of her.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #70071 02-19-2008 12:24 PM
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EzJim Offline OP
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Well, you all were right. I have to watch out for the dehydration. I stopped for my last chemo and the next thing I knew I was getting fluids. I was dehyrated and given fluids along with 3 other small bags. I imagine they were chemo. The Dr told me of I get to feeling bad, stop at any time and the nurse will give me fulids thru an IV. Over 5 hrs on the chemo office today and close to the same at PCP office , lab and the rads.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #70075 02-19-2008 12:43 PM
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Jim,

Take them up on the IV offer. You know the one thing I regret getting was a port because every time I got dehydrated they took for ever finding a vein. Most of the time I had to have the Queen nurse find one after the worker nurses stuck me like a voodoo doll.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #70076 02-19-2008 01:37 PM
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My brother got fluids every time that he had chemo AND he went in at least one other time per week just to get more fluids. He still ended up in the hospital for 4 days because of severe dehydration.

David is right - take them up on the fluids offer.

Jean


* Root for Joe *
Sister of Joe (43, non-smoker/chewer; occ. drinker). Mouth problem 3/07. Diag with Stage I 6/07. Diag with Stage IV 9/07. In EPOC at Univ of Chicago. Cisplatin/cetuximab 1/wk x 8. Then, IMRT 5x/wk x 7 and weekly chemo. Done 12/21/07. Looks good as of 4/08, 7/08, 8/08, 1/09.
ord_dfw #70080 02-19-2008 02:40 PM
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EzJim Offline OP
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I already told them I would be stopping by there for fluids. The nurse was tellin 3 others getting chemo, that what I have is very unique and very painful.Both of them have been studying everything they can find about OC. LOL Only the one wants to look in my mouth and it gets her everytime. My lips are even white and bleed at the corners. Tongue is mostly white too. Have a good evening all. Not up to this tonite.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #70100 02-19-2008 08:46 PM
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oh Jim I hope tthey can help you find some relief. The hydration will certainly help you through the chemo--- it definitely helped me be able to handle it. My heart goes out to you. Can't wait for you to get through the implant treatment the 29th so you can finish up treatments and start healing.

Hang in there. I'm routing for you big time. Kate


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
EzJim #70102 02-19-2008 09:02 PM
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Jim,

Sending you hugs and prayers. Hang in there, and make sure to get all the nourishment you can, ok? smile


Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08

JUNE 30, 2008 Officially CANCER FREE!!!
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EzJim Offline OP
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If I don't get the mourishment I need, it has to be may fault. I have 5 cases of Carnation VHC > I helped David earn his commission. LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #70117 02-20-2008 04:06 AM
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Jim,

It's not about fault, even though I know you were kidding when you said that. We just sometimes CAN'T get anything down our throat without it coming back up, etc.

Also I'm not just talking about getting fluids at chemo time as that's standard protocol, I'm talking about getting them EVERY DAY form now on. I know I wish I had had the foresight to do that.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #70122 02-20-2008 05:17 AM
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Uh, my Dad too, David. I told him the advice you gave about the water, and he tries so hard. He keeps a large cup with a straw with him at all times. Same with the feeding tube, he tries, but says he gets so nauseated from it. I feel so badly for him. thank heaven for advice like yours, or we would never have known about it having not gone through it.

Last edited by LarrysDaughter; 02-20-2008 05:18 AM. Reason: sent too quick w/out finishing

Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08

JUNE 30, 2008 Officially CANCER FREE!!!
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