| Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Cisplatin (and radiation) hit me hard. I had to have my second round of cisplatin a week after the ideal schedule because my neutrophil count was too low at first. As for the third one, I was neutropenic and just was not getting any better for a couple of weeks so they just skipped it. There's research that actually shows no diff. in the effectiveness of concurrent chemo and rad. if you get two vs. three rounds of chemo. How hard these things hit you don't necessarily have a lot to do with how fit you are.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | Joined: Feb 2008 Posts: 4 Member | OP Member Joined: Feb 2008 Posts: 4 | Thanks Nelie, that's good info.
| | | | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2007 Posts: 580 | GeorgeH, Brian is, as usual, right on the mark. Always discuss problems and possible solutions with your Docs. What worked and was acceptable for one individual may not be good for you. I hope all is going well with your treatment. Cheers, Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend. Live, Laugh, Love & Learn.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Also be careful of Cisplatin and hearing loss. If you hear any ringing in your ears tell your MO immediately. I didn't recognize "ringing in my ear" and now I have permanent high frequency loss in both ears.
Also CIB VHC has tons of protein.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | I did use Aquaphor on my skin before they gave me Biafine and the Aquaphor was much, much less effective than the Biafine which they gave me late in the process. I even have an Aloe product called Aloe Relief that I have used for years that seemed to work better than the Aquaphor. Biafine cannot be used on open wounds so if your skin has now cracked, you would have to wait for that to heal before using. Ask your doc about it.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | We thought the aloe vera gel worked better than the prescribed aquaphor...healed better and was way less greasy.
Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | Joined: Oct 2007 Posts: 2 Member | Member Joined: Oct 2007 Posts: 2 | George
The BC Cancer Agency suggested I use WellSkin Glaxal Base. It's obviously available in Canada. It worked great for my skin, apart from some minor itching I didn't have any skin problems with 35 radiation sessions.
Best of luck,
Sam
SCC base tongue Dx Mar 07 (age 43), 35x radiation, 7x cysplatin, treatment ended 6/22/07
| | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | I was also given someting called "Radiagel" to try by the radiation oncology nurse. If I am recalling right, that helped somewhat but the Biafine worked better.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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