| | Joined: Feb 2008 Posts: 38 Contributing Member (25+ posts) |  Contributing Member (25+ posts)
Joined: Feb 2008 Posts: 38 | It's so hard to watch my brother suffer with so much pain. You feel so helpless, sometimes. I am so glad he has so many people on here supporting him. I will keep you all updated on him. God bless you all. Carol | | | | | Joined: Jun 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 42 | glad to see you carol, i want every one in your family and jims family to know that i want the best for him also.. i know there has been alot going on and im the bad one for all that has happenend in jims life right now but i really do wish everyone would understand i did not leave jim because he has cancer.. there comes a time in everyones life that things are not all peachy and things have to move on... as you all know i was there for jim thru the first battle of his cancer and would still be there for him now if i was treated like i was a person.. and no i dont want any ones pity, thats the last i want .. all i wanted was to be treated like a person, not one to be pushed to the way side...i have so many times wanted to be there and take jim to the dr and such but it seems everytime i want to tell him that he sends me nasty email or messages on messenger that just makes me think other wise..i just ask myself who is this talking??it just seems he doesnt want my help anyway... im really glad you will be able to be there and help him... sorry for all the trouble i have caused in your whole family...and i do wish him and you all the best....luv ya all .. barb
Barb
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Will be thinking of you Jim. It takes a lot of courage to go into
surgery and put yourself in someone else's hands. I was not just scared, terrified was the word. You are very brave, just smile when you wake up and know the worst is over!!
Keep in touch,
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Hang in there, Jim. Thinking of you.
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Jim, I don't know if you are still reading this but I just wanted to say how much it concerns me that you've lost 44 pounds during treatment. Over how many weeks is that? 7? 8? That is a dangerous rate at which to lose weight and it really doesn't matter whether you "had it to lose". It's a clear sign you aren't getting the nutrition your body desperatly needs right now.
In another topic, you were bragging about not having a PEG but given your weight loss your doctor should be insisting on the PEG if he wants to see you survive this and be around for a while afterwards.
I really love your spirit and how much you ahve survived in your life and that is why it just really concerns me that you would do this to your body, on top of what the cancer treatment is doing to your body. You need to get enough nutrition and clearly you are not getting enough of it orally. Other people here who say they are your friends, and who you regard as friends, should be pushing you to get the PEG too right now. If they really care about you and your your health, instead of some anti-PEG agenda, they would be.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Thank God there is someone helping to ensure that Jim gets the assistance he is going to need to get through this horrible ordeal! Jim, if you read this, know that we are thinking of you, praying for you earnestly!
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | YesI am reading this. I was surprised to see my sister had posted. She's the baby of the family LOL I luv em all. Barb, why don't we leave this stuff out of the forums? I believe everyone in my family here and blood family hold nothing against you. You were great as long as it lasted, but I was being OC mean and couldn't help it. Someday you will believe one of us on here. I go for the surgery Friday at 6AM and scheduled for 8AM. Thanks for the kindness all and you are right,,it is tiome for a peg.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I was brought up to accept the actions caused by myself and not to sluff it to anyone else. Barb, no one in my family blames you for anything. You gotta loose that complex. OK?
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Jim, you'll be in my thoughts and prayers Friday and over the weekend. I'm glad you'll have family members supporting you and I'm glad you're going to take care of yourself in terms of nutrition even if it means getting the PEG. Hang in there, tough guy!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Nov 2007 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2007 Posts: 212 | Hey Jim,
Just want to wish you well and hope Friday and the subsequent recovery is swift and complete. Will be rooting for you.
Cancer of Tongue, SCC early Stage 1, Dx 3/13/07, partial glossectomy 4/14/07 found no residual carcinoma and a granular cell tumor with pseudo epitheliomatous hyperplasia.
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