#70267 02-21-2008 04:53 PM | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | Hi all i love this thread proberbly because its right where i am, after going to my Dr tuesday he has refused to help me get any more tube feed or liquid food, this may seem harsh but he said its time to start eating, i know this i am trying but so far cant find anything i can eat everything sticks to my mouth
things i have tried ....
potatoes with lots of gravey
toast with lots of butter
veg with butter
veg with gravey
tomatoes (these really burnt and stung)
any ideas ? id be very greatful
thanks for reading
Debz
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Tomatoes are very acidic debz and probably best avoided for a while. To start off i would try thin soups and ice cream,and see how that goes.
love liz
Last edited by Cookey; 02-21-2008 04:58 PM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | overcooked broccilii,cauliflower pastas. work great with me. Things that are "wet". I stay away from tomatoes, citrus and anything spicy. No to spagetti sause however alfredo sause is good. and watered down jello works better for me then firm.
Good luck, Brenda
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
| | | | | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | Today I went to waffle house and had a waffle and sausage, lots of lite syrup and water. I am shocked that I could eat a waffle however I can not eat bread. No longer can I have a cheeze burger and yeah I miss it (NOT) I am eating healthier now then I ever have. Only because of the restircted things that I can eat, But you have to try new things every day. And keep your water baootle right at your hand. My mom suggested that I also use my ensure when I eat because I have to swallow so much water that I don't get half the calories I am supposed to get. I am still loosing weight but I keep putting stuff in my mouth. Also I still throw away alot of stuff. As I said in my earlier post, over cooked stuff and watery stuff goes easier then not. Again keep trying , Brenda
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Yes, stay away from tomatoes and most fruit for a while. I have just recently been able to eat tomatoes.
Things that early on were tolerable were:
Pasta, specially elbow macaroni with butter (or cheese sauce)
Mashed potatoes, canned peaches, yoghurt (no berry or fruit initially)
Shrimp, soups of course initially just a broth then cream soups etc..
Whipped cream is soothing too!
Markus
Last edited by Markus; 02-21-2008 06:44 PM.
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | DebZ,
My mom could eat Campbell's Double Noodle Chicken Noodle Soup. That was a staple for her for a long time. She claims it was the easiest to eat.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | The worst thing I tried to eat was mashed potatoes. I thouht they would be the easiest. What tasted so-o good to me was cream of chicken soup. So good. Then I found I could crush up crackers in the soup and double good. Also, oatmeal with lots of milk, butter and extra sugar(sinful)but oh so good. Of course, ice cream and plain yogurt without fruit. Juices all the time of anykind will give good calories with nutrition.
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Though many juices are acidic and if you have a sensitive mouth will cause pain just like tomato sauce. Juices that are nonacidic and easy on the mouth--peach juice, apricot juice and pear juice. I have also found some carrot juices that are blended with apple juice to be good.
I just found a Campbells chunky soup--broccoli/cheese and chicken with potatoes that blends into a really smooth soup if you put it in the blender (not all soups do--for example clam chowder leaves you with little clam bits that can cause problems if you can't do chunks fo stuff yet). It has a lot of calories if you have the entire can--which is one big bowl--I think about 450 cals or so.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Also, if you have a problem with mashed potatoes try them with LOTS of gravy--it makes a difference!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | I have found that for me mashed potatoes are dry even smothered with gravy. They also have a "drawing" effect on me so I tend to add more water to them and make them soupier. Also I mix my broccilli or wet veggies in with them.
Brenda
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
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