#69999 02-17-2008 10:13 AM | Joined: Aug 2007 Posts: 36 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 36 | Hi Everybody!
Well last Saturday I went to my parents house and Dad ate some broth! First time since Sept 17th! And he has eaten small spoonfuls of various liquids ever since,and he says it all tastes the way it should! Then we went to get the PET scan results and the bad news is they found something on his mandible on the opposite side of where his cancer was. We then remembered that is was a hole that didn't heal from tooth extraction so they think it is an infection in his jaw (but they plan to biopsy) and he will likely have to have hyperbaric chamber treatments.
However, the cancer in his tonsil, tongue and lymph nodes IS GONE!!!!!!!!!!!!!!!!!!!!
Yesterday was my birthday so we put a cake in the blender and my parents husband and MIL ate together at the table, played cards, dice, laughed etc. As little as a month ago I wondered If I would ever eat with my Dad again!
As many of you know, he qualified as possible "Worst PEG tube story known to man" His tube is now how it should have been 2 days after surgery and very manageable.
I'm not one to celebrate prematurely and am concerned about the new spot but my god I feel good!
LOVE LOVE LOVE!
Mariam
Caregiver to father,Frank -Tonsil SCC spread to base of tongue 2 lymph, T2N2M0 stage 4a, IMRT 35x, Erbitux 8x-stopped after 5 due to thrush infection and strp infection in PEG,diag Aug 07 tx concluded Nov 8 07 PEG issues Inpatient Oct 8th-Nov 8th.
| | | | | Joined: Apr 2007 Posts: 93 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2007 Posts: 93 | Miriam,
Happy Belated Birthday and I'm sure this had to be one of your best birthdays, with your dad doing so much better. Family and friends are the most important parts of our lives. May your dad's health continue to improve, I remember reading the horror story of his PEG. He and your mom are fortunate to have such a loving and caring daughter. Take care,
Nancy
Caregiver to sister Connie, dx 2005, scc tongue, 4 surgeries inc. radical left side neck dissection 7/06, 35 IMRT, and 7 cisplatin 2/07, passed away 8-11-07, 51 yrs. young, fought with courage, strength and grace, found peace on her new journey.
| | | | | Joined: Aug 2007 Posts: 36 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 36 |
Caregiver to father,Frank -Tonsil SCC spread to base of tongue 2 lymph, T2N2M0 stage 4a, IMRT 35x, Erbitux 8x-stopped after 5 due to thrush infection and strp infection in PEG,diag Aug 07 tx concluded Nov 8 07 PEG issues Inpatient Oct 8th-Nov 8th.
| | | | | Joined: Jul 2007 Posts: 30 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2007 Posts: 30 | Mariam,
Congrats on the good news and Happy Birthday! Where can I read your PEG story? I ended up in the emergency with an infection in mine, and then they had a heck of a time getting it out when I was done with it...
Bruce
Bruce
Age 57 SCC Stage3 BOT and 1 node PEG 35RADS
7CHEMOS Tx over 9-17-07 tube out 10-12-07 back to work 10-15-07.
| | | | | Joined: Aug 2007 Posts: 36 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Aug 2007 Posts: 36 | Thanks Greenbaybruce,
It's posted in the caregiver section, or I think you can click my name to see previous posts.
Caregiver to father,Frank -Tonsil SCC spread to base of tongue 2 lymph, T2N2M0 stage 4a, IMRT 35x, Erbitux 8x-stopped after 5 due to thrush infection and strp infection in PEG,diag Aug 07 tx concluded Nov 8 07 PEG issues Inpatient Oct 8th-Nov 8th.
| | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | That is tremendous news, after all of the struggles. I really hope things keep improving. Enhoy the moment!!
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Very, very good news. May you only have such good reports.
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Mariam,,a belated Happy Birthday wish and my hats off to your Dad for his efforts in beating this disease.He must be quite the man and I hope he's there when you have a Birthday in another 20 yrs.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | So glad to see you all coming out of the tunnel a bit. What good news and super that the PEG is now a non-issue like it is supposed to be.
I decided it was OK to celebrate even the moment...that although you know not to let your guard down, it feels so good to have some good news after weeks of worry and stress.
Enjoy, Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Jan 2008 Posts: 179 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2008 Posts: 179 | Oh you should feel joyous and you should celebrate!!!  Enjoy and treasure those moments! Sounds like your birthday was fantastic!
Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08
JUNE 30, 2008 Officially CANCER FREE!!!
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