#69603 02-10-2008 01:56 AM | Joined: Dec 2007 Posts: 13 Member | OP  Member
Joined: Dec 2007 Posts: 13 | Hello there, I'm Hayley and I'm 18. You might have heard about me already as my Mum has an account on here and I know she's posted before! I think her name is Hayley's Mum or something? Anyway, I have cancer of the larynx. I've had three cycles of chemo already and am about to start 7 weeks of radiotherapy with chemo once a week for 6 weeks. I have the PEG put in probably this coming week or the next, not really looking forward to it. But I know I'll be alright! It's just the thought of being sedated that freaks me out, I've been under general before which I was petrified of but I was fine so I know I'm just worrying over nothing. Don't really have much else to say...feel free to ask any questions! I am keeping a blog of my progress at www.kickingcancersarse.blogspot.comHayley
Hayley, 19. Diagnosed at 18 with cancer of the larynx (T4n2) on 20.11.07 Taxotere, cisplatin and 5FU x 3, carboplatin x 7 and 35 radiotherapy treatments Found out I am in remission on 21.08.08 www.kickingcancersarse.blogspot.com | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Hayley, you are a brave girl for one so young and have been thru a lot of pain. You make us proud of someone so young enduring so much and the still smiling. I haven't had a peg yet but might need one soon. I am getting the seed implants in my tongue the 29th and am not really looking forward to it. It will be at least 3 days lost while out of it. I wish you luck and hope the next round of treatments make you kick this stuff..
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Hayley,
You hang tough and talk on here as much as you want. Everyone here will be with you the whole way through your treatment and recovery.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Hi Hayley
Welcome to the board and post here as often as you need. When I was diagnosed with cancer I had only been under general anesthesia once and was really scared of anything where they put me under or partially under. I had a PEG put in and the surgery part was fine, though. It's true you are very sedated, not totally anesthetized, but really it's close to the same thing--you aren't aware of much.
One thing you should be aware of is that your stomach muscles will hurt quite a bit for a couple of days after the PEG is put in. I'm sure your doctor has told you this. When I had it done, for the first day even just the msucles it took to sit or stand up hurt like the dickens. I was told by my gastroenterologist that this is especially true when they insert a PEG into someone relatively young who has not already wasted away through not eating -- because there's more msucle they cut through. But the good news is this only lasts a couple of days. It is bad at first but gets better VERY quickly so if it happens please don't be afraid that it will feel that way long term. After some healing, you don't have any pain with a PEG at all. Just be sure they give you good painkillers for the couple of days you might need them!
Keep whupping that cancer and using the weapons you need to do it (as far as I'm concerned, the PEG is one of those)
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | Haley - you sure are one tough, brave young girl. Your loving mother shared some of your information with us and also your blog - I have been inspired by your courage. This is a wonderful forum filled with lots of caring people, many who have been through the experience of chemo. PEG and Rad Tx like you are having. YOu can get loads of good advice and support. I think you are definitely our youngest member, though! And, I feel confident that you will be our youngest survivor...
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Hayley, never fear a lttle pain > I imagine you are quite used to a little of it and will handle everything that comes your way. Just keep smiling and being upbeat about this OC.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2006 Posts: 16 Member | | Member
Joined: May 2006 Posts: 16 | Hayley you sound like one very mature young lady. Your mother must be very proud. I to had a peg tube and you will get thru it just fine. After a week or so it becomes part of you and you realize it is another tool in your quest to beat your cancer.This might be hard for you to beleive now but a year from now this will all seem like a bad dream and you will be a better, wiser and a more compasionate person than you already are. I,m 3 years since my diagnoses and I beleive I've never been more alive in my life.My thoughts and prayers will be with you and your family every day.
TIMOTHY C, AXEL
DIAG.3/9/2005 SCC STAGE 3 LEFT TONCIL WITH METZ. TO LYMPHNODES IRMT X 40, CISPLATIN ONCE A WK.X 8, LEFT NECK DISECTION 7/19/2005 CANCER FREE EVER SINCE.NON SMOKER, MODERATE DRINKER,RUNNER
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Hayley---your blog is great! You are an amazing young woman. I know that you will hang tough through your treatments! You and your family are in my prayers.
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
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