| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2007 Posts: 163 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2007 Posts: 163 | Brenda.. I think you must have the worlds largest cheerleading squad!
You have more gumption than anyone I know.
I wish that island retreat was real and we could all hang out...enjoy Cyprus and let us know what you think of it.
Pete and I had discussed retiring there at one time but my family thought it was not a good idea.
I hope you and your lump have a geat time... or did you divorce him..lol.
Take Care
Marica
Caregiver to husband (Pete) Stage IV Base of Tongue. Dx 04 2003 Chemo/Radiation no surgery.. doing great!
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Brenda, You enjoy every bit of your travels--I would LOVE to be going somewhere warm right now. Tell those lumps they have to wait a little.
In all seriousness, you are a role model for me and you're in my thoughts.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Thsnk you all for your good wishes, I shall have no Internet Communication after this morning, for about 10 days and will certainly miss having you around, to listen to you and speak with you.
The last couple of days have had me feeling like I could be making a wrong decision to go away--the usual pain, now can't seem to take 'deep breaths' any more, need more work on my relaxation techniques, erratic sleep, swollen ankles - Kidney failure??? Congestive heart failure???.
Still, I shall have my 'compression flight socks', as large a bottle of water as I can get on the plane, and a good supply of morphine, handy in my purse!
If I can just get through the flight, I'm lookinbg forward to just having some 'me' time to relax with Ray, without having to organise life around hospital, nurses, pharmacies, phone calls etc. and slapping on the 'happy mask' all the time.
Have a bag full of dressings in case 'the thing' does decide to burst at some inconvenient time.
Might also get some appetite back in congenial surroundings and if the other side of my cheek doesn't decide to grow too much more.
Might take the wig, so that we can practise for whole different stripping game--hmmm..what 's to take off/out first? Contact Lenses, Dentures, wig????. (At the moment, there are no urgent plans to remove a limb!)
Will try and come up with some suitable accompanying music!!
Hope you all have as good a week as ytou can have,
Au Revoir, A Bientot!
Brenda x
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Thsnk you all for your good wishes, I shall have no Internet Communication after this morning, for about 10 days and will certainly miss having you around, to listen to you and speak with you.
The last couple of days have had me feeling like I could be making a wrong decision to go away--the usual pain, now can't seem to take 'deep breaths' any more, need more work on my relaxation techniques, erratic sleep, swollen ankles - Kidney failure??? Congestive heart failure???.
Still, I shall have my 'compression flight socks', as large a bottle of water as I can get on the plane, and a good supply of morphine, handy in my purse!
If I can just get through the flight, I'm lookinbg forward to just having some 'me' time to relax with Ray, without having to organise life around hospital, nurses, pharmacies, phone calls etc. and slapping on the 'happy mask' all the time.
Have a bag full of dressings in case 'the thing' does decide to burst at some inconvenient time.
Might also get some appetite back in congenial surroundings and if the other side of my cheek doesn't decide to grow too much more.
Might take the wig, so that we can practise for whole different stripping game--hmmm..what 's to take off/out first? Contact Lenses, Dentures, wig????. (At the moment, there are no urgent plans to remove a limb!)
Will try and come up with some suitable accompanying music!!
Hope you all have as good a week as ytou can have,
Au Revoir, A Bientot!
Brenda x
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL, what a lady you are Brenda. I like the strip descripton. It had me alughing. Have a nice trip.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Brenda ....
I know I havent been posting much ..been busy and sick .... BUT I can say that even through all of this ..Your sense of humor is still the same as it was a year ago !!! Completley remarkable !!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Shar.. we just have to change the look on your avatars face to a smile. She looks so sad. Either that or a kid caught doing something she was told not to. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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