#68690 01-28-2008 05:17 PM | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | Never could spell bisquits right but I sure can eat them. Mom made a pan tonight and I had to try one my goodness it was good. Yeah I had a glass of water right there and she made meatloaf. I still have a hard time eating potatoes and rice but I can eat alot of things only I have to keep my water ready. Still no saliva but I can eat. Is that weird?
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thats absolutely amazing!!!!!
Please share with me your secret, I struggle to eat everyday. My diet is basically yogurt and chocolate milk.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | It's only going to get better.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Christine,
I had problems with many foods initially, especially things that are crumbly and stick everywhere. Meat was still another problem.. beside the taste it was nearly impossible to swallow.
Try to work your way up to cream soups and then soups with vegetable, then mashed potatoes, soft pasta (macaroni) etc. I still have little spice tolerance and a normal slice of pizza may taste very spicy... One thing that was strange, I tolerated seafood from very early on (shrimp especially).
Best
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Dec 2007 Posts: 138 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2007 Posts: 138 | Congratulations on being able to eat biscuits without any saliva!!!
Nine years out. New normal with limitations, but surviving and living life to the fullest.
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Marcus,
If shrimp works, lobster should work even better. All that butter helps get it down. Claws are easier than tails.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | [quote=ChristineB]Thats absolutely amazing!!!!!
Please share with me your secret, I struggle to eat everyday.
[/quote]
I use the frozen biscuits and undercook them a bit and put LOTS of butter (real butter, no margarine for me) and jam on em.
Now keep in mind I started being able to do this at about 4 months post IMRT.
KC
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Indeed,
lobster does work as well, or better. Although this is not an everyday thing....
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | bisquits smoothered in gravy or honey butter meltd. Gotta be wet. I eat a lot of pasta but keep my water VERY close. I have found that if I have a cup of coffee with french vanilla creamer in it kind of coats my mouth ok so it goes down a little easier. I haven't reied seafood yet becuase everything taste so salty to me. I used to eat and cook with a lot of salt now I don't use it at all. My nutritionalist told me use gravy alot so I do try bisquits with sausage gravy from Mcdonalds I was totally shocked when I was able to eat that but man was it good. I still end up throwing alot of food away but I try eating something different every day just like we did when our mamas used to make us do when we were young children. Even things I could eat yesterday I try them again another day to see if maybe I can do it. It gets better every day.
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
| | | | | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | I can't use sweet stuff but gravy is my best friend. Bisquits are so good covered in it. Meatloaf and chicken (thighs) are good too.I used to only eat white meat with chicken but found it is too dry so I switched to dark meat and can eat that with kittle difficulty.
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
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