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Joined: Jun 2007
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I went to the store and bought some baby food. LOL That's what I ate after surgery in Aug and it works just as good now. I give up on trying to make food that doesn't burn my tongue or mouth. I have about anything possible to help with this pain, but nothing kills it enough to even eat blended food. Baby food and tapioca . LOL


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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I feel like my avatar just jumping around. its happy. I have come to really like the ensure and boost. That is a shame too. because when I first started I could not stand the smell of it. I have found in the freezer department a dinner by weight watchers smart choice it is roast beef. It has brocilli and cauliflower in it lots of gravy and really good. Try it you'll like it. Oh a plus on that is you can eat it with or with out teeth.LOL Take care, Brenda


49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
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During radiation, I ended up with a blister the size of a dime under my tongue due to the radiation bouncing off of fillings in my teeth. I pretty much stuck to alfredo sauce with noodles, chicken noodle soup with an egg mixed in, and lots of scrambled or fried eggs (sometimes with grits).


Lisa - Diagnosed 8/14/07 with Stage 1 metastatic squamous cell carcinoma, unknown primary, most likely nasopharyngeal, status post 2 surgeries, completing 6 weeks IMRT radiation on 11/26/07.
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I can deal with the alfredo sause but I hate eggs. Its fun learning things we can eat isn't it


49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
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For those that like eggs, poached and soft boiled worked well also.


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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If Brian is watching, this new food forum would be great. Not only for those who are not able to chew and swallow, but also for
the nutrition facts that are needed for us all. I could not swallow whole foods for a long time, but you had to pay for cookbooks with recipes. I even called the American Cancer Society. A lady had made one, but there was a fee. I needed it that day!!
My youngest son just graduated chef school and has watched me struggle. He is very sensitive about my needs when I could not eat and made me really great soups and homemade bisques! We could all publish on here and everyone could benefit for free.
Just a wonderful thought. We could feel like we are contributing something.
Thanks for listening
Debbie


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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Brian has added a new forum just for us cool huh. Thanks Brian


49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
Joined: May 2007
Posts: 666
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One thing that would be useful is to separate the food into different categories/stages. i.e. stuff you want to try at the end or after radiation, then add items that may be palatable 3 months later and so on. Obviously, there will be a lot of individual differences too.
I just made turkey and gravy (frozen in roasting pan {Jennie-O}). Just put the thing in the oven.. (so much for gourmet cooking....). In any case it was very easy to eat, I feel I could have tolerated that a long time ago. I also had a beer. If you must have one try a dark beer with little carbonation. As I found out tonight guinness works well for me. ... and I am now a cheap date.

M





Last edited by Markus; 02-23-2008 03:42 PM.

Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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I was delighted to find this new subject on our forum. Having struggled with trying to come up with something new to eat for the last five years has become a hassle. Now we can share ideas that are necessary for our survival and get some variety in our food we can eat. I already learned about the Roast Beef by Smart Choice. Thanks. If we all just share one item, can you inagine how many new foods we can try that many of us never thought of. I am looking forward to more ideas and suggestions.

Hacklene


Hacklene
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ChristineB,
I have found that if you take the pork chop rib )the part with out the bone, have it cubed like cubesteaks cut it up bite size then quick fry it in butter, make a gravy with it it is better then sausage because it doesn't have the sage and pepper in it. I can't tolerate spicey things yet. But that is really good. It doesn't take long at all. Our meals take no more the about 20 minutes to fix any more. Its just trying to find something different that takes the longest. Keep going. Brenda


49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
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