| Joined: Feb 2007 Posts: 10 Member | Member Joined: Feb 2007 Posts: 10 | My husband was also at Hopkins. Because of the place of the stricture at the base of the larynx and in the esophagus, he was told that nothing could be done. Do you mind telling me what doctor (ENT) you are seeing at Hopkins? | | | | Joined: Jul 2007 Posts: 211 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jul 2007 Posts: 211 | My husband is seeing Dr. Wayne Koch at Hopkins. He had a throat procedure done a week ago because of a stricture that showed up on his swallowing test (although it didn't keep food, etc. from going down and being swallowed). Dr. Koch only felt the slightest resistance with the first instrument he used in his throat so he wasn't even sure that the scar tissue that showed in the swallowing test was very subtantive. He was not planning to really try to remove it per se due to the likelihood of causing even more scar tissue. He said that sometimes the surgical instrument slices through it but in my husband's case, it didnt' seem to create much resistance so the stricture may not be the real problem. He next moved on to using the dilation instruments to see if his throat was narrowed and it wasn't. My husband's throat has been sore from the procedure so we're not really sure if it was helpful.
Sophie T.
CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+ induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
| | | | Joined: Aug 2008 Posts: 30 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Aug 2008 Posts: 30 | Nelie, My dad just had his esophagus opened and he was told that it is too constricted and he needs another procedure. It sounds like he is going to have the same thing done that you had with the two surgeons. We are going to Loyola Hospital in Chicago and I believe the two surgeons have done this procedure many times, but, I told my sister to ask how many procedures they have done(based upon your advice). Are there any doctors in the Chicago area that you or anyone else knows that are experts on this procedure. Let me know if you know anyone. Thanks.
Rett Father 80 y/o with BOT Stage IV/ SCC, laser surgery to remove tumor 8/08, Hemi glossectomy, reconstructed tongue, right side neck dissection, RT began 10-8-08, chemo not recommended because of age, Peg tube, non smoker/drinker.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I have this procedure every 3 months to keep my esophagus open. Some Drs act like this is major surgery when it really isn't much at all from what I see . I have been hving this since 1996 and I'm still here.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jun 2008 Posts: 51 "OCF Down Under" Supporting Member (50+ posts) | "OCF Down Under" Supporting Member (50+ posts) Joined: Jun 2008 Posts: 51 | Hi....I had my first dilatation on Wednesday, I had a general anaesthetic which was good. I was very nervous, my throat is very sore so I guess I will know is a few days whether it worked or not. The surgeon told my I may have to have it done every month or so for a while, but will have to wait to see how this one went.
SCC Base of tongue stage 4. 10 hour operation Radical neck dissection and hemiglossectomy 23/10/06 35 Rad treatments and 3 high dose Cistplatin Dec 06 - Feb 07. Ex casual smoker 6 to 8 a day - casual drinker. Very fit and diet conscious.
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | I have had my esophagus stretched about three times since my radiation and chemo treatments for tonsil cancer ended in January 2008. The last time was 7/17/09. My gastronterologist performed the procedure, which was called an Upper GI Endoscopy. Mine showed an esophageal stricture, which he dilated. I also had gastritis, for which he prescribed medicine. However, the procedure was very simple and I believe all I had was valium to be sedated. My throat felt a little sore for several hours afterward, and then was fine. I could really tell the difference in swallowing - he told me I should probably have the procedure done about every three months or so. Good Luck with your procedure(s).
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | Jim, depending on the circumstances, dilation can be a big deal and turn into major surgery while being done. My gastrodoc said that my throat was so constricted that there would be danger of piercing the tracheal-esophageal wall with an endoscope and he would prefer it be done in a hospital (I'm not sure yet if dilation is even a possibility for me -- I can't swallow anything).
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ive been following this post. I had planned on asking my doc if this was something I would have done. Thanks for posting about what to be aware of, Pete. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Mine is alway done in a hospital. They take biopsies every time too therefore the pain after for a few days. Any time they put you to sleep there is danger Pete. There is always the chance you won't wake back up. I hate to be blunt, but that's one of the chances we take.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Nov 2005 Posts: 1,128 | The good news is that the more you've been put to sleep, the more likely it is that you will wake up!
Sometimes dilation is done in outpatient setting.
Age 67 1/2 Ventral Tongue SCC T2N0M0G1 10/05 Anterior Tongue SCC T2N0M0G2 6/08 Base of Tongue SCC T2N0M0G2 12/08 Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06 Neck dissection, trach, PEG & forearm free flap (6/08) Total glossectomy, trach, PEG & thigh free flap (12/08) On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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